Not Everyone Is Looking At MeHow you look at your eyes is not how everyone else will look at your eyes. This is something I had to remind myself of when I was in the...Reactions0reactionsComments0 comments
My Experience with Sleep and Thyroid Eye DiseaseFrom an outside perspective, it can be difficult to understand just how much thyroid eye disease (TED) can impact someone on a daily basis and make normal activities much more...Reactions0reactionsComments2 comments
Explaining Thyroid Eye Disease to OthersThyroid eye disease (TED) is a rare condition. This community is for people living with TED and caregivers or friends and family of people living with this condition. Our goal...Reactions0reactionsComments0 comments
The Support We NeedIs there a person in your life you lean on to help you navigate the ups and downs of thyroid eye disease? Do you rely heavily on one person or...Reactions0reactionsComments0 comments
How Glasses Helped Me with TED (Part 2)Editor's Note: This is part 2 of a series. Please read part 1 here. "Do you wear glasses?" my friend asked me. She was on the phone with her then-boyfriend...Reactions0reactionsComments0 comments
The Financial Impact of My Thyroid Eye Disease JourneyLet’s face it, getting treatment for chronic/rare/complicated medical conditions like thyroid eye disease (TED) is incredibly expensive and a challenge for many individuals. From doctors to surgeries to travel to...Reactions0reactionsComments0 comments
Self-Care is Always ImportantHey there! We are back again with another talk about self-care! I have written other articles about how self-care is so important and what I do that I consider self-care...Reactions0reactionsComments0 comments
Navigating Thyroid Eye Disease - How Am I Supposed to Feel?Something that became apparent in my experience with thyroid eye disease (TED) is that other people’s journeys would not be the same as mine. In my head the road map...Reactions0reactionsComments0 comments
Eternally OptimisticAfter almost 3 years, my thyroid eye disease (TED) specialist has informed me that I am in an "inactive" phase of this disease. There has been so much uncertainty and...Reactions0reactionsComments0 comments
My Vision Journey (Part 1)When I was a junior in high school, I failed the school vision test. I could not read the letters below a certain line from far away the way I...Reactions0reactionsComments0 comments
How My Thyroid Eye Disease Affected My FamilyAfter writing several articles about how thyroid eye disease (TED) affected my life, I decided to delve deeper and talk about how TED affected my family. This meant asking questions...Reactions0reactionsComments0 comments
Loosing Who You Once WereIt is funny. As you get older, you change. I am not the same person I was in my early 20’s now that I am in my 30's. I have...Reactions0reactionsComments0 comments
Finding Support for Thyroid Eye Disease with Fuzzy FriendsI am a cat lover. How much of a cat lover? (Cut to a pile of funny cat socks and last year’s holiday cards featuring my cat in a sweater.)...Reactions0reactionsComments0 comments
"Are You The One with TED?"It was the morning after my cousin got married to his longtime partner. I was sitting in the hotel dining area, sipping on a Starbucks, trying to wake up, when...Reactions0reactionsComments0 comments
Moving Beyond Thyroid Eye DiseaseFinally! I made it! After a six-year battle, I am now on the other side of thyroid eye disease (TED). I am looking forward to the New Year, 2023, with...Reactions0reactionsComments2 comments
How I Became an Advocate: Jill's StoryIt was January of 2021, and I was feeling more alone than ever. We had been going through a pandemic and so everything was scary and there was still so...Reactions0reactionsComments0 comments
My Positive View on Surgery for Graves’ Disease and Thyroid Eye DiseaseOver the past 2 and a half years I have had 1 surgery to treat Graves’ disease and another 4 surgeries to address the damage caused by thyroid eye disease...Reactions0reactionsComments0 comments
Why My Eyes Are Still My FavoriteIf someone were to ask me what my favorite part of my body was before I had thyroid eye disease (TED), I would answer with my eyes. Even now after...Reactions0reactionsComments0 comments
Spoon Theory and Thyroid Eye DiseaseI first learned about spoon theory a few years ago. It’s a metaphor related to chronic illness that discusses the amount of energy someone has available each day. Everyone starts...Reactions0reactionsComments0 comments
5 Ways I Keep Myself on TrackThere are so many things I do to keep myself on track when it comes to my Graves' disease and thyroid eye disease (TED). My doctor is great and I...Reactions0reactionsComments0 comments