TED In America: What's That?

TED In America: What Is That?

Living with thyroid eye disease (TED) can be frustrating. What can make it worse is the lack of information and research available for people living with TED and their loved ones. Many people quickly jump online to research the ins and outs of TED but have trouble finding reliable information. Even more difficult can be finding someone who is actually living with TED to connect with and share experiences.

In an effort to learn more about the challenges of living with thyroid eye disease, we are conducting a survey. By taking our survey, you can bring awareness to the realities of life with TED and help others feel less alone.

What is the survey about?

The survey covers basics like diagnosis and treatment. It also dives into the nitty-gritty, including the emotional impact and day-to-day challenges of TED. We hope to learn more about all things TED, including surgery, symptoms, and quality of life.

Why should I take the survey?

Each person who takes the survey contributes to better awareness and knowledge about TED. You can also help others who are dealing with TED to feel less alone. Sharing through the survey can reveal the similarities and differences between people's journeys with TED and bring greater awareness to this condition that affects so many.

What will the survey ask me?

The survey will ask about:

  • Diagnosis
  • Symptoms
  • Quality of life and relationships
  • Engagement with doctors
  • Treatment awareness and experience

We do not require your name, address, or other personal information.

Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your browser and return to it when you are able. You will resume where you left off.

How do we use the In America survey data?

Survey responses help us and our partners better understand the thyroid eye disease community. All survey responses are kept confidential. They are reported only in total. This means your specific responses will not be reported. The answers will become the property of Health Union, LLC.

What happens after I take the survey?

After the survey closes, the Editorial Team at ThyroidEyeDisease.net creates an infographic from your responses. The infographic highlights important findings from the survey.

But that is not all. We also publish articles and videos based on learnings from the survey. We hope that this survey-driven content contributes to the information available to those affected by TED. Our goal is to help people connect with those who have walked the same path.

One voice may seem like it will not make a difference, but each person can change how others perceive TED and bring comfort to someone coping with a diagnosis.

Still have questions? Comment below or email us at contact@thyroideyedisease.net for more information.

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The ThyroidEyeDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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