Tepezza

By Phylly

1 min read

I just had my 4th infusion and I can’t say I see a difference.

Still struggling

My skin around my eyes are still puffy. I wake up everyday with crusty eyes and they are constantly wet. I’m forever wiping them and the liquid coming out is sticky I’m not sure why or what that is. Anyone else having these issues?

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samantha-sarube Community Admin
Hi <inline-mention username="Phylly" user-id="4742444"/>, i'm sorry to hear your treatments aren't working as well as you had hoped! I know how frustrating that must be. I'm confident if other members of our community have had a similar experience, they will share it with you. In the meantime, have you had the chance to follow up with your doctor about the treatment not being effective yet and the other symptoms you are experiencing? Maybe they can offer some insight? All the best, Sam S. (<a href='https://thyroideyedisease.net' target='_blank'>ThyroidEyeDisease.net</a>, team member).
1. Love44109 Member
 <inline-mention username="samantha-sarube" user-id="4232149"/> I went thru all infusions didn’t work.85,000 dollars,,,,now surgery,,,,I’ve been going thru this now 8 yrs and it’s been Hell.I’m praying the surgery give my life back.
2. samantha-sarube Community Admin
 <inline-mention username="Love44109" user-id="8677309"/>, we are sending you all of the positive vibes that we can that the surgery is successful for you. Please check back in and let us know how you are doing post-surgery! All the best, Sam S. (TED Team).
Roxann Kranstover Moderator & Contributor
Hi <inline-mention username="Phylly" user-id="4742444"/>, I know how frustrating it is to be going for the infusions every three weeks and not see any noticeable results. I was so anxious to get approved for the Tepezza treatment and then to get beyond my TED symptoms. It did go rather slowly for me. I know that through all of the studies with Tepezza it was proven that most patients need to go through all eight infusions to see the best results. I felt less pressure after the first four infusions. By the sixth infusion I could see my eyes looking less puffy. Most was gone by the eighth infusion however I still had retracted eyelids land excess skin above my eyes from the prolonged swelling. The positive for me was that once I was done with the Tepezza treatment the inflammation was under control and I could have surgery to correct the muscle damage (retracted eyelids). I hope you start noticing more results soon. All the best to you. Roxann K. Team Member