I Am Tired of Thyroid Eye Disease
Last updated: May 2023
I am tired.
Deep down in my bones and in my heart, I am tired.
I am tired of thinking about my eyes multiple times a day.
I am tired of looking different.
I am tired of remembering the person I was, seeing photos of her, and wondering who she would be today if thyroid eye disease (TED) had never forced itself upon her.
I am tired of waking up in the mornings with my eyes painfully dry.
I am tired of eye drops three times a day.
I am tired of how different my glasses look on me.
I am tired of feeling self-conscious in photos and videos.
I am tired of being scared.
I am tired of analyzing my face in the mirror and wondering, full of fear if my symptoms will someday return.
I am tired of wondering what would have happened if XYZ had gone differently.
I am tired of strangers outside of the TED community commenting on my eyes.
I am tired of explaining how much TED impacts my daily life.
I am tired of people saying that everything will be okay.
I am tired of there being so few treatment options.
I am tired of waiting to see what will happen.
I am tired of feeling like I’m in a constant state of adjustment.
I am tired of wondering.
I am tired of feeling sad.
I am tired of hurting.
I am tired of thyroid eye disease, however...
I’m thankful for the TED, chronic illness, and thyroideyedisease.net communities. I’m glad that my advocacy has helped many people. I’m grateful for the messages I receive from others with TED. I don’t know where I would be without my supportive family and wonderful, caring team of doctors.
I just truly wish that things were easier for all of us.
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