Devastated and Struggling With Graves’, Hashimoto’s and TEDEditor’s Note: This post was written by a former TED community member Hi, I’m Sandra. I’ll try to keep this as short...reactions3comments
Staying Positive and Eliminating StressSince being diagnosed with TED, I have had 2 additional flare ups. It seemed just when I started getting my confidence back...reactionscomments
Graves Disease & TED What a Shock!I was diagnosed with Graves Disease in 2008, with swelling on the upper right eye lid. Soon after I developed double vision...reactionscomments
🌟 Welcome to my TED Talk — Thyroid Eye Disease, That Is 🌟After more than a decade of reconstructive surgeries to repair TED damage, I’m ready to spill. Why now? Because I’m just about...reactions1comment
Third time is a charmHello, dear community, I’ve been reading your stories over the past year, and they’ve been a huge source of support for me...reactions4comments
Graves & TED All At OnceAbout 5 years ago, my daughter, a friend and I were kidding around and laughing when the friend asked that question, "What's...reactions2comments
Life after TepezzaI was diagnosed with TED in 2020. What a nightmare... my eye doc, actually I went to 2, told me I had...reactions1comment
The struggles of TED2 years ago I was diagnosed with thyroid eye disease aka TED Graves disease. It impacted my life in so many ways...reactionscomments
What’s in my bag?“Why carry such a big purse?” My friend asked me one day. “Well," I replied “I really may need it.” She looked...reactionscomments
My storyI was recently diagnosed with TED and my biggest problem is painful dry eye. My ophthalmologist told me because my eyes bulged...reactionscomments
I hate the way I look nowIve been diagnosed with Graves’ disease and thyroid eye disease almost a year back. My eyes have changed. I simply hate the...reactionscomments
Knowledge & UnderstandingIt took over a year and several medical professionals (including an Ophthalmologist & Osteopath) to finally get a blood draw, via a...reactions2comments
UncertaintyI have all symptoms of this disease although my thyroid is under-active. I have been on levothyroxine for several years now and...reactionscomments
TED hints (what worked for me)My journey began with itching in my eyes, shooting pains & dryness not helped with drops.Tried to get a MD appointment but...reactionscomments
TED SurgeryI had bulging eyes and double vision for four years never stayed home but had to take public transit for handicap, that...reactions2comments
Awareness of TEDIt's means people understanding symptoms and not thinking you're just lazy or understanding that you can't control the fact some days are...reactions1comment
Double vision journeyYes, I have it. It's rotational, and it's changing toward becoming vertical. My double vision started in February, I had to drive...reactions7comments
TEDHi all. I was diagnosed at age 41 with Graves. In the summer of 2021. Had 12 ER visits for tachycardia/chest pain...reactions1comment
Not AloneI just read this story and did think about how I didn't realize that bumping into things, etc. was just a part...reactionscomments
Graves Disease? Am I dying?I have suffered from auto immune diseases since I was 27. But in 1999, I bent down to brush my teeth and...reactions1comment
