🌟 Welcome to my TED Talk — Thyroid Eye Disease, That Is 🌟After more than a decade of reconstructive surgeries to repair TED damage, I’m ready to spill. Why now? Because I’m just about done — and because I hope my experience...reactions1comment
Third time is a charmHello, dear community, I’ve been reading your stories over the past year, and they’ve been a huge source of support for me. Your experiences have helped me tremendously. I was...reactions4comments
The struggles of TED2 years ago I was diagnosed with thyroid eye disease aka TED Graves disease. It impacted my life in so many ways. I wasn't able to drive at night because...reactionscomments
What’s in my bag?“Why carry such a big purse?” My friend asked me one day. “Well," I replied “I really may need it.” She looked quite perplexed. This has become a daily necessity...reactionscomments
My storyI was recently diagnosed with TED and my biggest problem is painful dry eye. My ophthalmologist told me because my eyes bulged, even though very slightly, it was enough that...reactionscomments
I hate the way I look nowIve been diagnosed with Graves’ disease and thyroid eye disease almost a year back. My eyes have changed. I simply hate the way I look now. I hate the way...reactionscomments
Double vision journeyYes, I have it. It's rotational, and it's changing toward becoming vertical. My double vision started in February, I had to drive to work. First, it was driving with one...reactions5comments
TEDHi all. I was diagnosed at age 41 with Graves. In the summer of 2021. Had 12 ER visits for tachycardia/chest pain palpations tremors. I developed one hell of a...reactions1comment
Not AloneI just read this story and did think about how I didn't realize that bumping into things, etc. was just a part of it. I so had difficulty going through...reactionscomments
TED hints (what worked for me)My journey began with itching in my eyes, shooting pains & dryness not helped with drops.Tried to get a MD appointment but this was mid pandemic and was told that...reactionscomments
Life after TepezzaI was diagnosed with TED in 2020. What a nightmare... my eye doc, actually I went to 2, told me I had dry eye and my right eye was starting...reactions1comment
Awareness of TEDIt's means people understanding symptoms and not thinking you're just lazy or understanding that you can't control the fact some days are good and some are horrible. It also means...reactions1comment
Knowledge & UnderstandingIt took over a year and several medical professionals (including an Ophthalmologist & Osteopath) to finally get a blood draw, via a Dermatologist, to identify the problem. My eyes were...reactionscomments
Graves Disease? Am I dying?I have suffered from auto immune diseases since I was 27. But in 1999, I bent down to brush my teeth and one eye was looking in the mirror, and...reactions1comment
Graves & TED All At OnceAbout 5 years ago, my daughter, a friend and I were kidding around and laughing when the friend asked that question, "What's wrong with your eye?". One eye was twisted...reactionscomments
UncertaintyI have all symptoms of this disease although my thyroid is under-active. I have been on levothyroxine for several years now and the dose remains constant. I had cataract surgery...reactionscomments
TED SurgeryI had bulging eyes and double vision for four years never stayed home but had to take public transit for handicap, that part was hard! Then finally get my eye...reactions2comments
TepezzaI just had my 4th infusion and I can’t say I see a difference. My skin around my eyes are still puffy. I wake up everyday with crusty eyes and...reactions4comments
Welcome to ThyroidEyeDisease.net StoriesAt ThyroidEyeDisease.net, we believe that we are stronger together than we are alone. Living with or caring for someone with thyroid eye disease (TED) can be a challenge, but the...reactionscomments
