What Did I Do Wrong? Thoughts on Graves’ Disease and Thyroid Eye DiseaseI have received a lot of messages from individuals with Graves’ disease and thyroid eye disease (TED) over the years. One question that often comes up in conversation is “What...Reactions0reactionsComments0 comments
Strategies for Coping with a Rare Disease like Thyroid Eye DiseaseWhen you are diagnosed with a rare disease, you might feel overwhelmed about what to expect. Because few people have thyroid eye disease (TED), there may be a lack of...Reactions0reactionsComments0 comments
Accepting What I Cannot ControlHere is what no one warned me about when I was diagnosed with thyroid eye disease - when my eyes get irritated, it is the worst feeling ever and there...Reactions0reactionsComments0 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...Reactions0reactionsComments0 comments
The Emotional Energy of Thyroid Eye DiseaseSometimes I think about how much easier my life would be without thyroid eye disease. My eyes would often wake me up in the middle of the night. The eyelid...Reactions0reactionsComments2 comments
Psoriasis and TEDMore than 80 different varieties of autoimmune diseases affect more than 23 million people in the United States. Somewhere along the way, the body’s immune system makes a mistake and...Reactions0reactionsComments0 comments
Progress Meets PainThe morning started out great. I had noticed a significant change in my left upper eyelid. My right upper eyelid had dropped down some time ago, and my left had...Reactions0reactionsComments0 comments
Deciding on a DoctorOnce I was diagnosed with Graves’ Disease, I had to find an endocrinologist. I feel like for me personally, my symptoms kind of came out of nowhere, but maybe that’s...Reactions0reactionsComments0 comments
7 Tips for Parents with a Chronic IllnessNavigating life with a chronic condition like thyroid eye disease (TED) can be challenging. Adding children and parenting stress into the mix can make it feel like an impossible task...Reactions0reactionsComments0 comments
Orbital Decompression Surgery Recovery - Part 2Welcome back to the discussion of my experience recovering from orbital decompression surgery. (Please see part one to read about pain, bruising, swelling, and irritations.) I had two separate surgeries...Reactions0reactionsComments4 comments
Finding Patience in the MiseryGood for the future, annoying for the present. This is the motto I have been repeating in my head as I go through another bout of terrible eye irritation. The...Reactions0reactionsComments0 comments
Statin Therapy and Thyroid Eye DiseaseIf you are living with thyroid eye disease (TED), your treatment options have been limited until recently. With new treatments available, some people with TED have found relief in their...Reactions0reactionsComments0 comments
Noticing My Eyes After Treatments for HyperthyroidismWhen I first started seeing my endocrinologist, she put me on tapaszole for my hyperthyroidism. I was on that for a while. I was also put on a beta-blocker because...Reactions0reactionsComments0 comments
What Is Power Posing?Striking a “power pose” means taking up a lot of space with your body – standing upright with great posture, legs wide, hands on hips, chin raised to the sky...Reactions0reactionsComments0 comments
Rheumatoid Arthritis and Thyroid Eye Disease: What Is the Connection?Over the years, doctors and researchers have focused more attention to comorbidities, or 2 or more illnesses or conditions that happen at the same time in a person. Comorbid illnesses...Reactions0reactionsComments0 comments
Recovering from Orbital Decompression Surgery - Part 1I was relieved when I was finally scheduled for orbital decompression surgery. In the weeks leading up to surgery, I wanted to prepare myself as much as possible, but I...Reactions0reactionsComments9 comments
Four Eyes and Floating WordsThree years ago in early October, I woke up to two smoke detectors on my ceiling. It was early in the morning and I had to get up to get...Reactions0reactionsComments0 comments
Hashimoto’s Thyroiditis and Thyroid Eye DiseaseIf you have been diagnosed with thyroid eye disease (TED), you may or may not have problems with your thyroid. Despite its name, TED can occur in those with a...Reactions0reactionsComments0 comments
Rare Disease Day® and TEDThe last day of February is Rare Disease Day® all around the world. It is a day to recognize and raise awareness about rare diseases and how they impact patients...Reactions0reactionsComments0 comments
Parenting While Managing a Chronic IllnessWhether or not you have a child, most people would agree that parenting is hard. Although there is no right or wrong way to raise a child, new trends, the...Reactions0reactionsComments0 comments