Repeat After Me: You Are Not Alone!Finding out about my Graves' disease diagnosis and later my thyroid eye disease (TED) diagnosis, I definitely felt alone. I mean, I did not know anyone else who was diagnosed...Reactions0reactionsComments0 comments
How TED Changed My EyesMy eyes changed over one summer. It was gradual in the moment but obvious in pictures. I did not notice a difference until fall and even then I was told...Reactions0reactionsComments2 comments
Keep Calm and Spoon OnHave you ever heard of the term "spoonie?" If you know what a spoonie is, then there is a good chance you may consider yourself a spoonie or relate to...Reactions0reactionsComments0 comments
The Rollercoaster Ride That Is TEDOnce I seemingly had my Graves’ disease a little more under control, that’s really when I noticed a significant issue with my eyes. I was sent to an eye doctor...Reactions0reactionsComments0 comments
Tips to Feel More Like Yourself with Thyroid Eye DiseaseMy experience with thyroid eye disease and Graves’ disease was a constant struggle. Every day was difficult, and I felt like my body was spinning wildly out of control. I...Reactions0reactionsComments2 comments
Keratitis and Thyroid Eye DiseaseKeratitis can impact people with the autoimmune condition known as thyroid eye disease (TED). Both diseases involve inflammation. In keratitis, the cornea (the see-through layer on top of the iris...Reactions0reactionsComments0 comments
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Thinking About Going Gluten Free? Do This First.“If I stop eating gluten will it help my thyroid eye disease symptoms?” I have seen this question posed online more times than I can recall. And I understand why...Reactions0reactionsComments0 comments
Timeline of MigrainesI have my first migraine in the summer of 2018. On a random day in June, my head starts to hurt. It’s on the right side of my forehead and...Reactions0reactionsComments0 comments
Thyroid Eye Disease in ChildrenThyroid eye disease (TED) is an autoimmune disease. In TED, the immune system mistakenly attacks tissues near the eye. This results in inflammation and damage to the muscles, tissues, and...Reactions0reactionsComments0 comments
Tips for Tracking Thyroid Eye Disease SymptomsIt was a scary moment when I first realized that my eyes were changing. I had been practicing makeup techniques for my wedding later that year, and something was off...Reactions0reactionsComments0 comments
How Graves’ Disease and TED Changed My PerspectivePrior to being diagnosed with Graves’ Disease and thyroid eye disease (TED), I feel like my perspective was completely different. I did not think about the fact that many people...Reactions0reactionsComments0 comments
The Argument for Stick-On PrismsWhen I was diagnosed with thyroid eye disease (TED), I had really bad double vision. My reality was flipped upside down within a matter of weeks and it was all...Reactions0reactionsComments4 comments
Finding a Support Person for Doctor AppointmentsPeople with chronic health conditions, like thyroid eye disease (TED), often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems concentrating can be frequent side effects...Reactions0reactionsComments0 comments
My Experience With SteroidsWhen I was diagnosed with TED in the fall of 2018, the treatment I was offered by my thyroid eye doctor was steroids. Steroids would decrease the swelling around my...Reactions0reactionsComments1 comments
What Not to Say to Someone with Thyroid Eye Disease : Part 2My initial article on this topic led to several in-depth discussions with individuals in the chronic illness community. The general consensus - it is very difficult to know what the...Reactions0reactionsComments0 comments
What Did I Do Wrong? Thoughts on Graves’ Disease and Thyroid Eye DiseaseI have received a lot of messages from individuals with Graves’ disease and thyroid eye disease (TED) over the years. One question that often comes up in conversation is “What...Reactions0reactionsComments0 comments
Strategies for Coping with a Rare Disease like Thyroid Eye DiseaseWhen you are diagnosed with a rare disease, you might feel overwhelmed about what to expect. Because few people have thyroid eye disease (TED), there may be a lack of...Reactions0reactionsComments0 comments
Accepting What I Cannot ControlHere is what no one warned me about when I was diagnosed with thyroid eye disease - when my eyes get irritated, it is the worst feeling ever and there...Reactions0reactionsComments0 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...Reactions0reactionsComments0 comments