Thinking About Going Gluten Free? Do This First.“If I stop eating gluten will it help my thyroid eye disease symptoms?” I have seen this question posed online more times than I can recall. And I understand why...Reactions0reactionsComments0 comments
Timeline of MigrainesI have my first migraine in the summer of 2018. On a random day in June, my head starts to hurt. It’s on the right side of my forehead and...Reactions0reactionsComments0 comments
Thyroid Eye Disease in ChildrenThyroid eye disease (TED) is an autoimmune disease. In TED, the immune system mistakenly attacks tissues near the eye. This results in inflammation and damage to the muscles, tissues, and...Reactions0reactionsComments0 comments
Tips for Tracking Thyroid Eye Disease SymptomsIt was a scary moment when I first realized that my eyes were changing. I had been practicing makeup techniques for my wedding later that year, and something was off...Reactions0reactionsComments0 comments
How Graves’ Disease and TED Changed My PerspectivePrior to being diagnosed with Graves’ Disease and thyroid eye disease (TED), I feel like my perspective was completely different. I did not think about the fact that many people...Reactions0reactionsComments0 comments
The Argument for Stick-On PrismsWhen I was diagnosed with thyroid eye disease (TED), I had really bad double vision. My reality was flipped upside down within a matter of weeks and it was all...Reactions0reactionsComments4 comments
Finding a Support Person for Doctor AppointmentsPeople with chronic health conditions, like thyroid eye disease (TED), often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems concentrating can be frequent side effects...Reactions0reactionsComments0 comments
My Experience With SteroidsWhen I was diagnosed with TED in the fall of 2018, the treatment I was offered by my thyroid eye doctor was steroids. Steroids would decrease the swelling around my...Reactions0reactionsComments0 comments
What Not to Say to Someone with Thyroid Eye Disease : Part 2My initial article on this topic led to several in-depth discussions with individuals in the chronic illness community. The general consensus - it is very difficult to know what the...Reactions0reactionsComments0 comments
What Did I Do Wrong? Thoughts on Graves’ Disease and Thyroid Eye DiseaseI have received a lot of messages from individuals with Graves’ disease and thyroid eye disease (TED) over the years. One question that often comes up in conversation is “What...Reactions0reactionsComments0 comments
Strategies for Coping with a Rare Disease like Thyroid Eye DiseaseWhen you are diagnosed with a rare disease, you might feel overwhelmed about what to expect. Because few people have thyroid eye disease (TED), there may be a lack of...Reactions0reactionsComments0 comments
Accepting What I Cannot ControlHere is what no one warned me about when I was diagnosed with thyroid eye disease - when my eyes get irritated, it is the worst feeling ever and there...Reactions0reactionsComments0 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...Reactions0reactionsComments0 comments
The Emotional Energy of Thyroid Eye DiseaseSometimes I think about how much easier my life would be without thyroid eye disease. My eyes would often wake me up in the middle of the night. The eyelid...Reactions0reactionsComments2 comments
Psoriasis and TEDMore than 80 different varieties of autoimmune diseases affect more than 23 million people in the United States. Somewhere along the way, the body’s immune system makes a mistake and...Reactions0reactionsComments0 comments
Progress Meets PainThe morning started out great. I had noticed a significant change in my left upper eyelid. My right upper eyelid had dropped down some time ago, and my left had...Reactions0reactionsComments0 comments
Deciding on a DoctorOnce I was diagnosed with Graves’ Disease, I had to find an endocrinologist. I feel like for me personally, my symptoms kind of came out of nowhere, but maybe that’s...Reactions0reactionsComments0 comments
7 Tips for Parents with a Chronic IllnessNavigating life with a chronic condition like thyroid eye disease (TED) can be challenging. Adding children and parenting stress into the mix can make it feel like an impossible task...Reactions0reactionsComments0 comments
Orbital Decompression Surgery Recovery - Part 2Welcome back to the discussion of my experience recovering from orbital decompression surgery. (Please see part one to read about pain, bruising, swelling, and irritations.) I had two separate surgeries...Reactions0reactionsComments4 comments
Finding Patience in the MiseryGood for the future, annoying for the present. This is the motto I have been repeating in my head as I go through another bout of terrible eye irritation. The...Reactions0reactionsComments0 comments