Early Symptoms of TED and My Journey for a DiagnosisI stopped saying, "my eyes hurt," after seeing three optometrists and my general practitioner multiple times, only to get no answers and at times even being dismissed. Let me take...reactionscomments
Self-Care and Comfort Items for People With Thyroid Eye DiseaseThyroid eye disease (TED) can affect people through physical symptoms, like eye pain, swelling, and eyelid retraction, as well as mental and emotional symptoms. It is important for all people...reactionscomments
“The Other Side” of Thyroid Eye DiseaseI suffered from thyroid eye disease for years, and there was little that I could do but wait for treatment. I knew for a long time that multiple surgeries were...reactionscomments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...reactionscomments
Getting a Second Opinion for Thyroid Eye DiseaseA diagnosis of any disease or life-altering condition like thyroid eye disease (TED) can be overwhelming. You may have many questions about your diagnosis. You may also be curious about...reactionscomments
Recovering from Upper Eyelid SurgeryIf you are reading this, perhaps you or a loved one is scheduling upper eyelid surgery for thyroid eye disease (TED) and are wondering what to expect. I’m hoping that...reactions4comments
Tips for Someone Just Getting DiagnosedOnce I started becoming very vocal about having Graves’ disease, and writing about my experience on social media, I started getting more messages asking me questions and talking about what...reactionscomments
Why I Don't Google My TED SymptomsGoogle is great for a lot of things; Looking up restaurant reviews, finding directions to someplace new, and reading celebrity gossip. But it can also be an overwhelming tool when...reactionscomments
Why I Chose a ThyroidectomyI must have looked like a terrified mouse when I met the endocrinologist who diagnosed me with Graves’ disease. I sat in the exam room with my heart racing and...reactionscomments
Why Self-Care is So ImportantSelf-care is so important. I feel like it is often something that a lot of people do not put high on their list. We are so busy all the time...reactionscomments
Ask the Advocates: Diagnosis and SymptomsA diagnosis of a rare disease like thyroid eye disease (TED) can be difficult to accept. People may feel overwhelmed, sad, frustrated, or angry. They also may feel relieved to...reactionscomments
Cruising with TEDThe summer after I was diagnosed with thyroid eye disease (TED), I went on vacation with my family. This wasn’t any old family vacation, it was a vacation with my...reactionscomments
How Makeup Helped Me Cope With Thyroid Eye DiseaseI’ve always been fascinated by the art of makeup, the way color, shading, and shadow can manipulate shapes. It can highlight some features while taking the focus away from others...reactions6comments
Having a Good Support SystemWhen diagnosed with anything, it really always helps to have people around you that you can lean on. It is scary for some people to go through life changes alone...reactionscomments
What Is an ENT, and How Can They Help My TED?ENT stands for "ear, nose, and throat" doctor. These doctors are also known more formally as otolaryngologists. They cover anything that has to do with the head and neck, including...reactionscomments
Ask the Advocates: What Made You Want to Be a TED Advocate?You are your best advocate. You know your body and your condition better than anyone else. Of course, you likely have a team of doctors who help support you in...reactionscomments
How TED Impacted My Mental HealthI have always had anxiety. Since I was a kid, I had always worried about all the big and small details of my life. Overthinking a lot of things on...reactionscomments
Endocrinologists and Their Role in TEDThyroid eye disease (TED) is an autoimmune disorder. In TED, your body mistakes healthy cells behind your eyes for foreign invader cells and attacks them. Your immune system can attack...reactionscomments
It’s Okay to Not Feel Strong - Thoughts on Thyroid Eye DiseaseSomething that people tell me quite frequently regarding my journey with Graves’ disease and thyroid eye disease (TED) is, "Wow, you’re so strong to have gone through all that." Honestly...reactionscomments
Telling Your Story May Be Good for Your Health“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms...I could argue at...reactionscomments