Articles

After having 4 surgeries to treat thyroid eye disease (TED), I did not think that I would ever need to meet a new TED specialist again. However, my regular specialist/surgeon...

Everyone's journey with thyroid eye disease (TED) is uniquely their own. For me, I never thought of surgery as a possibility of being part of my journey. Maybe I am...

When we last spoke we were having our final post-op appointment before you went on sabbatical for several months. This appointment marked the end (or at least what I hope...

I look in the mirror and do not recognize the person staring back at me. She is not me. She is not who I imagine I am. Her eyes are...

I have spent a fair amount of time talking about thyroid eye disease (TED), but I do not think I have talked enough about Graves disease. My Graves’ disease diagnosis...

The same question has been posed to me several times in interviews and chats with other rare disease advocates - "What are you most proud of?" And I never knew...

How you look at your eyes is not how everyone else will look at your eyes. This is something I had to remind myself of when I was in the...

From an outside perspective, it can be difficult to understand just how much thyroid eye disease (TED) can impact someone on a daily basis and make normal activities much more...

Thyroid eye disease (TED) is a rare condition. This community is for people living with TED and caregivers or friends and family of people living with this condition. Our goal...

Is there a person in your life you lean on to help you navigate the ups and downs of thyroid eye disease? Do you rely heavily on one person or...

Editor's Note: This is part 2 of a series. Please read part 1 here. "Do you wear glasses?" my friend asked me. She was on the phone with her then-boyfriend...

Let’s face it, getting treatment for chronic/rare/complicated medical conditions like thyroid eye disease (TED) is incredibly expensive and a challenge for many individuals. From doctors to surgeries to travel to...

Hey there! We are back again with another talk about self-care! I have written other articles about how self-care is so important and what I do that I consider self-care...

Something that became apparent in my experience with thyroid eye disease (TED) is that other people’s journeys would not be the same as mine. In my head the road map...

After almost 3 years, my thyroid eye disease (TED) specialist has informed me that I am in an "inactive" phase of this disease. There has been so much uncertainty and...

When I was a junior in high school, I failed the school vision test. I could not read the letters below a certain line from far away the way I...

After writing several articles about how thyroid eye disease (TED) affected my life, I decided to delve deeper and talk about how TED affected my family. This meant asking questions...

It is funny. As you get older, you change. I am not the same person I was in my early 20’s now that I am in my 30's. I have...

I am a cat lover. How much of a cat lover? (Cut to a pile of funny cat socks and last year’s holiday cards featuring my cat in a sweater.)...

It was the morning after my cousin got married to his longtime partner. I was sitting in the hotel dining area, sipping on a Starbucks, trying to wake up, when...