Ways to Support Someone Who Has TEDWhen I was diagnosed with thyroid eye disease (TED), everything felt different. I had an answer, a name for what I was...reactionscomments
Why Are Autoimmune Conditions More Common in Women?Editor's note: In this article, we use "women" to describe people assigned female at birth and "men" to describe people assigned male...reactionscomments
Interviewing My Mom, My Support PersonWhen we think about a diagnosis, we think about the patient first. It is only natural since they are the ones directly...reactionscomments
My Graves' AntibodiesI recently had an appointment with my endocrinologist. Every time I get my thyroid labs done, I have my Graves' antibody numbers...reactionscomments
Trying to Move On: Post-Op Thoughts on Thyroid Eye DiseaseNew surgery, new me! Is that the right phrase? I would like to say that my journey with thyroid eye disease (TED)...reactions2comments
What I Would Warn Myself About TEDThere was no time between who I was before thyroid eye disease (TED) and who I became once I had TED. Of...reactionscomments
The Start of My TED JourneyI had noticed my sunglasses were not fitting right about a year before I was diagnosed with thyroid eye disease (TED). I...reactionscomments
4 Things I Would Tell Myself About TED NowWhen the puffiness from the swelling first formed around my eyes, I asked someone if it was normal. They replied, "Yeah, it's...reactions5comments
My Experience with Tepezza: The Good and the BadOn January 21, 2020, the US Food and Drug Administration (FDA) approved Tepezza, made by Horizon Therapeutics, to treat thyroid eye disease...reactions4comments
How TED Taught Me PatienceI have always been a pretty patient person. I am not usually someone who sighs to myself in a long line or...reactionscomments
Meeting My New Thyroid Eye Disease SpecialistAfter having 4 surgeries to treat thyroid eye disease (TED), I did not think that I would ever need to meet a...reactionscomments
Why I Didn't Get SurgeryEveryone's journey with thyroid eye disease (TED) is uniquely their own. For me, I never thought of surgery as a possibility of...reactions2comments
An Open Thank You Letter to My Thyroid Eye Disease SpecialistWhen we last spoke we were having our final post-op appointment before you went on sabbatical for several months. This appointment marked...reactionscomments
The Stranger in the MirrorI look in the mirror and do not recognize the person staring back at me. She is not me. She is not...reactionscomments
Back to the Beginning of Graves' Disease and Thyroid Eye DiseaseI have spent a fair amount of time talking about thyroid eye disease (TED), but I do not think I have talked...reactionscomments
What I’m Proud Of - Graves’ Disease, Thyroid Eye Disease, and SingingThe same question has been posed to me several times in interviews and chats with other rare disease advocates - "What are...reactionscomments
Not Everyone Is Looking At MeHow you look at your eyes is not how everyone else will look at your eyes. This is something I had to...reactionscomments
My Experience with Sleep and Thyroid Eye DiseaseFrom an outside perspective, it can be difficult to understand just how much thyroid eye disease (TED) can impact someone on a...reactions2comments
Explaining Thyroid Eye Disease to OthersThyroid eye disease (TED) is a rare condition. This community is for people living with TED and caregivers or friends and family...reactionscomments
The Support We NeedIs there a person in your life you lean on to help you navigate the ups and downs of thyroid eye disease?...reactionscomments
