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I haven’t been officially diagnosed except by the ER for Hyperthyroidism. I think it’s Graves’ disease. My eyes hurt. My hubby just had a stroke and doesn’t want me to see a doctor for anything. I’m going to speak to see a doctor. I have medication for a month. Did you have to see a specialist?

  1. It sounds like you have so much going on with your husband's health and your own. When you were at the ER, did you receive a referral for an endocrinologist? With any thyroid disease it is so important to see and endocrinologist. This doctor will test your thyroid levels and monitor the medication you need as treatment. It may take a while to get into an endocrinologist so you may have to start with your GP to be monitored until your endo appointment. Graves' disease (hyperthyroidism) can be serious so I hope you can be under the care of a doctor really soon. 50% of people with Graves' disease develop thyroid eye disease (TED). This causes inflammation in the eyes along with many symptoms like swelling and eyelid retraction and bulging eyes and double vision. Because I want you to understand the seriousness of what your condition could be, I am attaching some articles. https://thyroideyedisease.net/healthcare-team . I truly wish you and your husband all the best and message us with any questions you have. We as a community are here for you. Roxann K. Team Member

    1. Hi, I wanted to chime in, as well. I’m sorry to hear that you ended up in the ER. I’m also sorry to hear about your husband. I hope he’s doing okay and was able to get the help he needed. May I ask why he’s hesitant for you to see a doctor? I’m glad that you’re following your instincts and are planning to seek out help. Both Graves’ disease and thyroid eye disease are serious medical conditions and can have life altering complications if left untreated. I saw specialists for both conditions - an endocrinologist for Graves’, and that doctor recommended an ophthalmologist who specializes in TED. If you have questions please feel free to reach out either in this thread or through DM if that would make you more comfortable.
      Wishing you and your family all the best,
      Jessica H (thyroideyedisease.net, team member)

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