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Read conversations, start a discussion, and connect with others about thyroid eye disease.

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Treatment with Tepezza Infusions

Hello Everyone. I was just wondering if anyone has been treated with IV Tepezza for their Thyroid Eye Disease. Did it help...

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Active Phase

I am starting IV SoluMedrol infusions this weekend for an active phase of TED. Future Tepezza is planned. I was wondering if...

Feelings with TED

What feeling would you say describes your TED journey?...

Devastated and Struggling With Graves’, Hashimoto’s & TED

Editor’s Note: This post was written by a former TED community member. Hi, I’m Sandra. I’ll try to keep this as short...

What Is Your Favorite Self-Care Routine?

Having thyroid eye disease can take a toll on your physical, emotional, and social health. What are some ways you practice self-care...

Self Care

Do you have a self care routine that works for you? Share your experience....

I saw the comment about doule vision...

I have already written my story; When you talk about double vision, mine is exactly the same. I see one just above...

Eyepatches

Have you ever considered an eyepatch to help your double vision from thyroid eye disease?...

Tips for Managing TED in the Winter

What strategies have you/do you plan to use to manage your TED symptoms this winter?...

Self-Care

This forum was part of our 2025 Awareness Giveaway, which is now closed. We encourage community members to continue the conversation about...

The Holidays with Thyroid Eye Disease (TED)

How are you preparing for the holiday season with TED?...

Tepezza

My mom is schedule to start Tepezza soon. We are currently on vacation and I have noticed an issue with her depth...

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