FeaturedTreatment with Tepezza InfusionsHello Everyone. I was just wondering if anyone has been treated with IV Tepezza for their Thyroid Eye Disease. Did it help with bulging, double vision, swelling, watering? Any side...Reactions 0 reactions Comments8 repliesBulging EyesGraves' DiseaseTreatment
FeaturedActive PhaseI am starting IV SoluMedrol infusions this weekend for an active phase of TED. Future Tepezza is planned. I was wondering if anyone had any effects/results with steroid infusions...Reactions 0 reactions Comments5 repliesActive Phase
Active 3 days agoWelcome! Please Introduce YourselfWelcome to our community! We’d love to learn a little about what has brought you here...Reactions 0 reactions Comments10 repliesAwarenessNewly Diagnosed
Will you take our TED In America Survey?There is so much for us to learn about what it is like to live with thyroid eye disease. To better understand the patient experience and realities of TED, we...Reactions 0 reactions Comments0 repliesAwareness
Sick feeling Recently had my first treatment, about a week afterwards starting feeling very dizzy and nauseated with NO energy, extremely tired all the time. Just wandering how long to expect these...Reactions 0 reactions Comments5 repliesCoping
TED - will I ever look like my old self? Hi there, I was diagnosed with Ted at the end of last year and Graves in September last year, my ophthalmologist said the active phase last around 2 years, I...Reactions 0 reactions Comments1 repliesActive PhaseCopingDepression
Caregiving Just reaching out to see if there are any caregivers (care partners) on this site...Reactions 0 reactions Comments3 replies
DiagnosisI have not been diagnosed but I know I have it. I have each and every symptom but one. I have been using ivizia drops and cleansing wipes and they...Reactions 0 reactions Comments1 replies
DrivingWhy is it so much harder to drive at night than day even with my glasses? And will i ever get over my light sensitivity...Reactions 0 reactions Comments1 replies
How Old Were You When Diagnosed With Thyroid Eye Disease?Curious, how old were you when you were originally diagnosed...Reactions 0 reactions Comments14 repliesDiagnosis
FeaturedHow Long Did It Take You to Get Diagnosed With Thyroid Eye Disease?Although not always the case, receiving an official thyroid eye disease diagnosis can take a while for many people. From the time you first noticed your thyroid eye disease symptoms...Reactions 0 reactions Comments2 repliesDiagnosisNewly Diagnosed
