FeaturedTreatment with Tepezza InfusionsHello Everyone. I was just wondering if anyone has been treated with IV Tepezza for their Thyroid Eye Disease. Did it help with bulging, double vision, swelling, watering? Any side...Reactions 0 reactions Comments9 repliesBulging EyesGraves' DiseaseTreatment
FeaturedActive PhaseI am starting IV SoluMedrol infusions this weekend for an active phase of TED. Future Tepezza is planned. I was wondering if anyone had any effects/results with steroid infusions....Reactions 0 reactions Comments14 repliesActive Phase
Active 3 days agoHow long does it take for TED to become stable and inactive?I want to get orbital decompression surgery but my eyes are worsening and the disease is active right now. How long did it take for the disease to become inactive?...Reactions 0 reactions Comments1 replies
Active 3 days agoCan’t do Tepezza due to Ulcerative colitis history. Anybody in the same boat?Has anybody been told that they can’t do Tepezza because of ulcerative colitis or IBD? My doctor told me it wasn’t an option, please let me know what you guys...Reactions 0 reactions Comments1 replies
Active 3 days agoTrial offered for LASN (phase 2) and Linsitinib (phase 2b)Hi, TED patient UK here, moderate-severe case, eyes already impacted by high astigmatism and short sightedness (L -22, R -15). Diagnosed with hyperthyroidism in Feb, on Carbimazole for over 5wks,.and...Reactions 0 reactions Comments1 repliesNewly DiagnosedTreatment
Unsolicited Advice What is the worst unsolicited advice you have received about your TED?...Reactions 0 reactions Comments0 repliesCoping
surgeryHas anyone tried surgery interventions to realign eyes?...Reactions 0 reactions Comments11 repliesSurgery
Positive MomentsHave you had a positive interaction with someone related to your TED? Have you had a doctor's appointment that made you feel great? Maybe a great day where symptoms didn't...Reactions 0 reactions Comments0 repliesCoping
TepezzaI’ve heard there’s a real possibility of a maintenance dose Tepezza in the near future. Pill or possibly an injection, I for one am all in if this happens and...Reactions 0 reactions Comments1 replies
Orbital decompression surgery Hi, I finally have a date for my surgery, and it is next week on Wednesday. I am so excited and in the same time I'm very nervous. Not scared...Reactions 0 reactions Comments6 repliesSurgeryTips & AdviceGraves' Disease