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How Old Were You When Diagnosed With Thyroid Eye Disease?

Curious, how old were you when you were originally diagnosed?

  1. 67

    1. , I appreciate you sharing with us! What were some of the symptoms that lead to your TED diagnosis? All the best, Sam S. (ThyroidEyeDisease.net, team member).


    2. 56

  2. I was 56.

    1. thanks for sharing! We know getting a TED diagnosis can sometimes take a while, how long were you experiencing symptoms before you were diagnosed? All the best, Sam S. (ThyroidEyeDisease.net, team member).

  3. I was 23 when I was originally diagnosed, however I believe my symptoms were misdiagnosed for years beforehand. I'm curious, how many other members have had "migraines" for years before their TEd diagnosis? I've had migraine headaches my whole life, but always said my TED headaches felt different. It took a great team of physicians to believe that!

    1. unfortunately, TED is so often misdiagnosed at the beginning! I'm confident if others have an experience with migraines they will share here but in the meantime here is an article one of our advocates wrote on their experience with TED and migraines: https://thyroideyedisease.net/living/timeline-of-migraines. All the best, Sam S. (ThyroidEyeDisease.net, team member).

  4. 53 but I refused to believe it until I was forced to return to the same doctor as symptoms had only progressed…. This was recently at the age of 56.

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