Tell us about your symptoms and treatment experience. Take our survey here.

caret icon Back to all discussions

Impact on Social Life

How has TED impacted your social life? What considerations do you have to make for your TED before attending a social event or making travel plans, or participating on social media?

  1. My balance and depth perception have been seriously affected

    1. thanks for joining the conversation. I’m sorry to hear that your balance and depth perception have been affected. That must be so difficult. Is there anything you’ve found that has helped? Wishing you a peaceful day, Jessica H (thyroideyedisease.net, team member)

  2. NO but it appears the docs are now proposing surgical intervention.

    1. if you feel comfortable sharing, would you mind if I ask which surgeries your doctor is considering? I’ve had four surgeries to treat TED and have written about my experiences. Would be happy to share if you’d like.
      Wishing you a peaceful day,
      Jessica H (thyroideyedisease.net, team member)

  3. Yes I would like to hear about your surgery experience

    1. so sorry for the delay. Sam linked to a few articles I’ve written (thanks !), but please feel free to let me know if you have any questions about my experiences. Wishing you a peaceful day, Jessica H (thyroideyedisease.net, team member)

  4. I appreciate these articles. However so far I have not heard from anyone whose eyeballs are not in alignment.

    1. , if you'd like you may get more responses from community members by starting a forum discussion on it here: ThyroidEyeDisease.net/forums All the best, Sam S. (TED team).

Please read our rules before posting.