Bringing Awareness to Thyroid Eye Disease: Our Inaugural TED Awareness Week 2022The third week of November is Thyroid Eye Disease Awareness Week! From double vision to dry and painful eyes to uncomfortable eye bulging, we know how difficult it can be...reactionscomments
My Letter to Thyroid Eye Disease (TED)You crept into my life in 2017, no introduction, no common friend, no invite...but there you were. On and off throughout my days you would interrupt me by injecting pressure...reactionscomments
My Mental Health is Number OneI know I have talked previously about mental health, thyroid disease, and thyroid eye disease (TED), but thought I would take a deeper dive into it. I know for me...reactionscomments
Eye Drops or No Eye Drops? A Dry Eye Dilemma“Your eyes are extremely dry. Can you feel how dry they are?” My regular eye doctor asked me during a follow-up visit with her two months after I was diagnosed...reactionscomments
New AdventuresStarting a new adventure is always the best. It is exciting and fun. On the other hand, it can also be extremely terrifying and nerve-racking. New beginnings are a mix...reactionscomments
Getting New Glasses with Thyroid Eye DiseaseI do not wear glasses all the time. I primarily need them for seeing details far away. My physical symptoms of thyroid eye disease (TED) progressed, and because I did...reactionscomments
The Elevator SpeechWhen I was first diagnosed with thyroid eye disease (TED), I did not want to believe it. So, simply put, I just did not. In fact, I denied it. I...reactions4comments
Reminders of TEDThe other day, I experienced a really bad migraine. It was so bad that I had to lie down in my bed for two hours because it hurt to move...reactionscomments
The Never Ending ExperienceHaving thyroid eye disease (TED) and a thyroid disease is really crazy. I feel like sometimes I feel really good and other times I do not. When I feel like...reactionscomments
Where I Find Support for Thyroid Eye DiseaseThyroid eye disease (TED) often feels very lonely. There is so much sadness and pain surrounding this disease, and it is hard for others to truly understand what individuals with...reactionscomments
Tips For Staying Connected While Dealing With TEDOur need for staying connected to other human beings, and a strong social support network, is a must for good health, just like nourishing food. The ups and downs of...reactionscomments
Questions I Had About TED After I Was Diagnosed (Part 2)After the initial shock of my thyroid eye disease (TED) diagnosis wore off, I still had a lot of questions. These questions had to deal more with the journey TED...reactionscomments
Thyroid Eye Disease - Talking About It Versus SilenceI generally respond to stress in two different ways: I will chat about work stress, politics, and what wild thing recently happened in the autoimmune disease community that I need...reactionscomments
Whatever You Do, SHOW UP!I was recently invited to a bridal shower. I was also recently diagnosed with thyroid eye disease (TED). For me, these two events directly contradicted one another. For all of...reactions4comments
Patient Leader Preferences: Sunglasses or Hats?We recently asked our thyroid eye disease (TED) community members to share their preferences with us on a variety of topics. We soon realized that sometimes the answers were complex...reactionscomments
Is There an Ideal Bedtime?Is there such a thing as an ideal bedtime? Or is there an optimal quantity and quality of sleep that each person needs each night? There is no single answer...reactionscomments
Questions I Had About TED When I Was Initially Diagnosed (Part 1)When I was initially diagnosed with thyroid eye disease (TED), I was overwhelmed. There was a lot of significant change happening all at once with the onset of the symptoms...reactionscomments
You've Decided You Want to See a Therapist . . . Now What?Editor’s Note: This article originally was written by Katelyn Harlow and shared by our partner site Cystic-Fibrosis.com. It was a cool, dreary November day. My husband and I were at...reactionscomments
How TED Affected My Quality of LifeDo you sometimes, or often, feel your quality of life has been affected by thyroid eye disease (TED)? Are your days "all about your eyes"? To be transparent, I will admit...reactionscomments
What Would You Title Your Documentary About Living with Thyroid Eye Disease?We recently conducted the Inaugural Thyroid Eye Disease (TED) In America survey to better understand the daily experiences of people who live with this condition. The survey asked the optional...reactionscomments
