Where I Find Support for Thyroid Eye DiseaseThyroid eye disease (TED) often feels very lonely. There is so much sadness and pain surrounding this disease, and it is hard for others to truly understand what individuals with...Reactions0reactionsComments0 comments
Tips For Staying Connected While Dealing With TEDOur need for staying connected to other human beings, and a strong social support network, is a must for good health, just like nourishing food. The ups and downs of...Reactions0reactionsComments0 comments
Questions I Had About TED After I Was Diagnosed (Part 2)After the initial shock of my thyroid eye disease (TED) diagnosis wore off, I still had a lot of questions. These questions had to deal more with the journey TED...Reactions0reactionsComments0 comments
Thyroid Eye Disease - Talking About It Versus SilenceI generally respond to stress in two different ways: I will chat about work stress, politics, and what wild thing recently happened in the autoimmune disease community that I need...Reactions0reactionsComments0 comments
Whatever You Do, SHOW UP!I was recently invited to a bridal shower. I was also recently diagnosed with thyroid eye disease (TED). For me, these two events directly contradicted one another. For all of...Reactions0reactionsComments4 comments
Patient Leader Preferences: Sunglasses or Hats?We recently asked our thyroid eye disease (TED) community members to share their preferences with us on a variety of topics. We soon realized that sometimes the answers were complex...Reactions0reactionsComments0 comments
Is There an Ideal Bedtime?Is there such a thing as an ideal bedtime? Or is there an optimal quantity and quality of sleep that each person needs each night? There is no single answer...Reactions0reactionsComments0 comments
Questions I Had About TED When I Was Initially Diagnosed (Part 1)When I was initially diagnosed with thyroid eye disease (TED), I was overwhelmed. There was a lot of significant change happening all at once with the onset of the symptoms...Reactions0reactionsComments0 comments
You've Decided You Want to See a Therapist . . . Now What?Editor’s Note: This article originally was written by Katelyn Harlow and shared by our partner site Cystic-Fibrosis.com. It was a cool, dreary November day. My husband and I were at...Reactions0reactionsComments0 comments
How TED Affected My Quality of LifeDo you sometimes, or often, feel your quality of life has been affected by thyroid eye disease (TED)? Are your days "all about your eyes"? To be transparent, I will admit...Reactions0reactionsComments0 comments
What Would You Title Your Documentary About Living with Thyroid Eye Disease?We recently conducted the Inaugural Thyroid Eye Disease (TED) In America survey to better understand the daily experiences of people who live with this condition. The survey asked the optional...Reactions0reactionsComments0 comments
I Am Tired of Thyroid Eye DiseaseI am tired. Deep down in my bones and in my heart, I am tired. I am tired of thinking about my eyes multiple times a day. I am tired...Reactions0reactionsComments4 comments
Going Through the Motions of EmotionFrom October 2018 to March 2020, I was in a constant state of worry over my eyes. Being worried was nothing new to me but suddenly I had something specific...Reactions0reactionsComments1 comments
Insensitive Reactions to People with Thyroid Eye DiseaseSymptoms of thyroid eye disease (TED) can be impossible to hide. The effects are often right there on the most visible part of your body – your eyes and face...Reactions0reactionsComments0 comments
My TED Symptoms Throughout the Active PhaseIn a past article, I addressed my initial symptoms of eye sensitivity and eye pain, which led me to search for a diagnosis. Before we get an actual diagnosis of...Reactions0reactionsComments4 comments
Red Flags and Thyroid Eye Disease - How I Found My DoctorIt is hard to find the right doctor for thyroid eye disease. I often see questions online - where do I turn? Who can diagnose me? Does my endocrinologist handle...Reactions0reactionsComments0 comments
How Has TED Impacted Your Mental Health?Mental health can be affected by anything at any time. Every person is different, and what impacts you and how you take care of your mental health is unique to...Reactions0reactionsComments0 comments
Sunglass Hut Gift Card Giveaway!The Sunglass Hut Gift Card Giveaway is now closed. Thank you for your interest! Summer is here! Don’t let thyroid eye disease (TED) keep you inside! Enter our giveaway for...Reactions0reactionsComments0 comments
Another DiagnosisSix months into my thyroid eye disease (TED) journey, I was diagnosed with another eye condition called keratoconus. I needed to get some more imaging done of my eyes that...Reactions0reactionsComments0 comments
Out of Control with Graves' DiseaseI think...no... I know I have always harbored a certain amount of anxiety. I tend to think deeply, putting everything in its proper place in my mind. With my mental...Reactions0reactionsComments0 comments