EyepatchesDouble vision from thyroid eye disease (TED) would frequently ruin my day. I hated it, especially when it happened in the early evening, which it often did. I am a...Reactions0reactionsComments0 comments
TED Patients Are Warriors and They Empower Me Every DayI talk a lot about being diagnosed with Graves' disease and thyroid eye disease (TED), and how it really messed with my mental health and self confidence. It did for...Reactions0reactionsComments0 comments
Driving with TEDThyroid eye disease (TED) forced me to look at my reality through a new lens. I did not really think about my eyes much before symptoms from this disease came...Reactions0reactionsComments0 comments
New Glasses: Things Getting Easier with Thyroid Eye Disease“Well things are looking really great!” my thyroid eye disease (TED) specialist told me during my most recent appointment. It had been about 10 months since my final surgery for...Reactions0reactionsComments0 comments
Things I Would Tell My Younger SelfI was diagnosed with Graves' disease years ago, and then also diagnosed with thyroid eye disease (TED). Both of these diagnoses happened in my 20s. I am now 32 and...Reactions0reactionsComments0 comments
Moving with TEDI was diagnosed with thyroid eye disease (TED) in the fall of 2018, 2 months before I was supposed to graduate college. Any dreams or ambitions I had after I...Reactions0reactionsComments0 comments
Why I Choose To Be a Patient AdvocateSometimes I ask myself, "Why am I doing this? Why did I commit to being a patient advocate for a whole community of people struggling with thyroid eye disease?" We...Reactions0reactionsComments0 comments
Flying SoloI recently took a trip to visit my parents. I had to navigate airport crowds, TSA, gates, luggage, and seat location on the departures side. On the arrivals side, I...Reactions0reactionsComments0 comments
Seeing My Eyes NowFor years, I would look at photos and my focus would go straight to my eyes. How big they were. How bizarre they appeared. How different they looked. How they...Reactions0reactionsComments0 comments
Watery Eyes? Tips for Managing Makeup with Thyroid Eye DiseaseThroughout my journey with thyroid eye disease (TED), makeup has been a very important tool for me. Like many people with TED, I could not recognize myself in the mirror...Reactions0reactionsComments0 comments
The Connection Between Hearing Loss and Tepezza® in Thyroid Eye DiseaseThyroid eye disease (TED) is a rare autoimmune disease that damages tissues around the eyes. An autoimmune disease is a disease that is caused by the body mistakenly attacking itself...Reactions0reactionsComments0 comments
Holding Onto My TED FeelingsI recently had a dream I had double vision. It was the strangest dream ever. Everything I was looking at in this dream was doubled. I woke up, trying to...Reactions0reactionsComments0 comments
TED in the FootnotesRecently, I was at the store when I came across this magazine all about thyroid health. I was waiting in line and had some time, so I flipped through it...Reactions0reactionsComments0 comments
Thyroid Eye Disease and Working 2 JobsLife has been pretty busy lately. I currently work 2 jobs and just recently reduced hours on my second job. I started thinking about how burnt out I felt, and...Reactions0reactionsComments0 comments
Seeing in the SunFor a few years, while I had thyroid eye disease (TED), my eyes were so sensitive to light. To the point where going outside was impossible. I would step outside...Reactions0reactionsComments0 comments
Walking Into the NightRecently we visited a beach community. It is the kind of place where people vacation year after year, bringing their families and their dogs. The community sits on a piece...Reactions0reactionsComments0 comments
Self-Care: Eye Skin CareI remember the exact moment I knew I needed to buy some eye cream. I was at the museum with my dad 5 months after I was diagnosed with thyroid...Reactions0reactionsComments2 comments
The Struggle is RealAll my life I have been a health-conscious person. As a teen perhaps somewhat overly critical, but as I matured I learned to be realistic. I monitored myself to eat...Reactions0reactionsComments0 comments
TED in the MainstreamI had never heard of thyroid eye disease (TED) when I was diagnosed with it in the fall of 2018. I was officially diagnosed with Hashimoto’s in January of that...Reactions0reactionsComments0 comments
Air Quality, Wildfire Smoke, and Thyroid Eye Disease"Come inside, smoke from a huge fire in Canada is moving into NYC." What?? I was working from home and sitting outside on my terrace. I looked up at the...Reactions0reactionsComments0 comments