My New NormalMy eyes will not be the same. That is a reality I have no choice but to accept. My eyes will not look the same, feel the same, be the...Reactions0reactionsComments2 comments
Shedding Some Light on TEDWhen I first started experiencing the symptoms of thyroid eye disease (TED), I was not quite sure what was happening. My eyes were itchy, red, and very watery. I would...Reactions0reactionsComments8 comments
I Love You but Hotels Are EasierI love having friends and family stay at my home. When we first moved to the Washington D.C. area, we knew our home would be a magnet for houseguests and...Reactions0reactionsComments3 comments
How TED Impacted My Stress LevelsAs I look back on the 3 years of being in the active phase of thyroid eye disease (TED), I realize that it had not only impacted my eyes but...Reactions0reactionsComments0 comments
FDA Warning: Eye Drops RecallThe US Food and Drug Administration (FDA) has issued a warning for people not to buy certain eye drops. This warning comes after several eye drop makers began voluntary recalls...Reactions0reactionsComments0 comments
TED Awareness Week 2023If you or a loved one is living with or has experienced thyroid eye disease (TED), then you likely know that it does not just impact your eyes. Thyroid eye...Reactions0reactionsComments0 comments
Thyroid Eye Disease Awareness Week 2023 Giveaway!The Thyroid Eye Disease Awareness Week 2023 Giveaway is now closed. Thank you for your interest! The third week of November is Thyroid Eye Disease (TED) Awareness Week! This year...Reactions0reactionsComments0 comments
Feeling Disconnected From OthersSitting in the waiting room of my thyroid eye disease (TED) doctor, I am surrounded by his other patients. While he was referred to me by my thyroid doctor to...Reactions0reactionsComments0 comments
Self-Confidence and Worrying That Thyroid Eye Disease Will Come Back AgainI feel like a lot of my writing here has to do with thyroid eye disease (TED) and Graves' disease really doing a number on my self-confidence. I was sitting...Reactions0reactionsComments0 comments
EyepatchesDouble vision from thyroid eye disease (TED) would frequently ruin my day. I hated it, especially when it happened in the early evening, which it often did. I am a...Reactions0reactionsComments0 comments
TED Patients Are Warriors and They Empower Me Every DayI talk a lot about being diagnosed with Graves' disease and thyroid eye disease (TED), and how it really messed with my mental health and self confidence. It did for...Reactions0reactionsComments0 comments
Driving with TEDThyroid eye disease (TED) forced me to look at my reality through a new lens. I did not really think about my eyes much before symptoms from this disease came...Reactions0reactionsComments0 comments
New Glasses: Things Getting Easier with Thyroid Eye Disease“Well things are looking really great!” my thyroid eye disease (TED) specialist told me during my most recent appointment. It had been about 10 months since my final surgery for...Reactions0reactionsComments0 comments
Things I Would Tell My Younger SelfI was diagnosed with Graves' disease years ago, and then also diagnosed with thyroid eye disease (TED). Both of these diagnoses happened in my 20s. I am now 32 and...Reactions0reactionsComments0 comments
Moving with TEDI was diagnosed with thyroid eye disease (TED) in the fall of 2018, 2 months before I was supposed to graduate college. Any dreams or ambitions I had after I...Reactions0reactionsComments0 comments
Why I Choose To Be a Patient AdvocateSometimes I ask myself, "Why am I doing this? Why did I commit to being a patient advocate for a whole community of people struggling with thyroid eye disease?" We...Reactions0reactionsComments0 comments
Flying SoloI recently took a trip to visit my parents. I had to navigate airport crowds, TSA, gates, luggage, and seat location on the departures side. On the arrivals side, I...Reactions0reactionsComments0 comments
Seeing My Eyes NowFor years, I would look at photos and my focus would go straight to my eyes. How big they were. How bizarre they appeared. How different they looked. How they...Reactions0reactionsComments0 comments
Watery Eyes? Tips for Managing Makeup with Thyroid Eye DiseaseThroughout my journey with thyroid eye disease (TED), makeup has been a very important tool for me. Like many people with TED, I could not recognize myself in the mirror...Reactions0reactionsComments0 comments
The Connection Between Hearing Loss and Tepezza® in Thyroid Eye DiseaseThyroid eye disease (TED) is a rare autoimmune disease that damages tissues around the eyes. An autoimmune disease is a disease that is caused by the body mistakenly attacking itself...Reactions0reactionsComments0 comments