Bridge the GapI walk through the store without pain from the light. I do not wear sunglasses or a hat. My eyes do not well up from imitation. I spent years shielding...reactionscomments
4 Tips for Communicating With Loved OnesEditor's Note: This article originally appeared on our partner site RareDisease.net. It can be so hard for people outside of the rare disease community to truly understand what we go...reactions2comments
Is It a New Active Phase of Thyroid Eye Disease?I am always worried (scared - okay, beyond terrified) that something bad will happen and thyroid eye disease (TED) will rear its’ ugly head again, launching itself into a new...reactionscomments
That Little Voice in My Head and TEDWhen you are dealing with a disease as complicated and individualized as thyroid eye disease (TED), the facts can be a bit blurry around the edges. I have been diagnosed...reactions2comments
Finding My Creativity AgainI am a creative person. I love writing poetry, stories, and journaling. I got a BA in creative writing from Metropolitan State University of Denver and graduated with Cum Laude...reactionscomments
Elephant on the PageI am reading through my old journals and I am shocked by the absence of my thyroid eye disease (TED). I did not remember this but when I was diagnosed...reactionscomments
Sometimes It’s The Little Things That MatterThyroid eye disease (TED) has a huge impact on my life physically, emotionally, socially, and financially. But it has also necessitated small changes and those small changes help me cope...reactionscomments
TED Symptoms: TriggersIt has been a few years since I have experienced extreme thyroid eye disease (TED) symptoms. I have lived in a phase I would call my new normal. Things definitely...reactionscomments
Walking on EggshellsWaking up with double vision on the first Wednesday of October 5 years ago was the first time I was suddenly made aware something had changed with my eyes. When...reactionscomments
Managing Thyroid Eye Disease in the WinterWinter is not my friend. While I enjoyed snowy activities as a kid, those days are long behind me, and I have come to dread that crisp feeling in the...reactionscomments
Holidays After Myasthenia GravisEditor's Note: This article was written by Mallory San Nicolas and originally appeared on our partner site Myasthenia-Gravis.com The holidays are coming up, and for someone with myasthenia gravis (MG)...reactionscomments
Staying Joyful During the HolidaysAs we approach the holiday season, I am inclined to reflect on how my eyes may be affected. With thyroid eye disease (TED), symptoms can come and go, sometimes depending...reactionscomments
TED Mixed With Cold WeatherWhen I had thyroid eye disease (TED), the cold weather was not my friend. I found I made very little progress with my eyes during the months when the cold...reactionscomments
What I Currently Do As Self-CareI am a big self-care advocate and I feel like every single person needs a form of self-care. It can be different for each person, but I really leaned into the...reactionscomments
How To Deal With the Holidays With TEDThe holidays can be stressful in general. A lot of family, a lot of togetherness. Catching up with how the year has gone. Having thyroid eye disease (TED) can add...reactionscomments
Feeling Disconnected From My BodyFor 3 years straight, my body and my emotions were constantly on high alert, waiting for when my eyes would become irritated from thyroid eye disease (TED). I was left...reactionscomments
Eye Doctor Versus Endocrinologist: Why I Had Both, and Not Just One or the OtherWhen I first was diagnosed with Graves' Disease, I found an endocrinologist. I have a great relationship with her and I am really grateful. I was lucky enough to have...reactionscomments
My New NormalMy eyes will not be the same. That is a reality I have no choice but to accept. My eyes will not look the same, feel the same, be the...reactions2comments
Shedding Some Light on TEDWhen I first started experiencing the symptoms of thyroid eye disease (TED), I was not quite sure what was happening. My eyes were itchy, red, and very watery. I would...reactions8comments
I Love You but Hotels Are EasierI love having friends and family stay at my home. When we first moved to the Washington D.C. area, we knew our home would be a magnet for houseguests and...reactions3comments
