Whatever You Do, SHOW UP!I was recently invited to a bridal shower. I was also recently diagnosed with thyroid eye disease (TED). For me, these two events directly contradicted one another. For all of...Reactions0reactionsComments4 comments
Patient Leader Preferences: Sunglasses or Hats?We recently asked our thyroid eye disease (TED) community members to share their preferences with us on a variety of topics. We soon realized that sometimes the answers were complex...Reactions0reactionsComments0 comments
Is There an Ideal Bedtime?Is there such a thing as an ideal bedtime? Or is there an optimal quantity and quality of sleep that each person needs each night? There is no single answer...Reactions0reactionsComments0 comments
Questions I Had About TED When I Was Initially Diagnosed (Part 1)When I was initially diagnosed with thyroid eye disease (TED), I was overwhelmed. There was a lot of significant change happening all at once with the onset of the symptoms...Reactions0reactionsComments0 comments
You've Decided You Want to See a Therapist . . . Now What?Editor’s Note: This article originally was written by Katelyn Harlow and shared by our partner site Cystic-Fibrosis.com. It was a cool, dreary November day. My husband and I were at...Reactions0reactionsComments0 comments
How TED Affected My Quality of LifeDo you sometimes, or often, feel your quality of life has been affected by thyroid eye disease (TED)? Are your days "all about your eyes"? To be transparent, I will admit...Reactions0reactionsComments0 comments
What Would You Title Your Documentary About Living with Thyroid Eye Disease?We recently conducted the Inaugural Thyroid Eye Disease (TED) In America survey to better understand the daily experiences of people who live with this condition. The survey asked the optional...Reactions0reactionsComments0 comments
I Am Tired of Thyroid Eye DiseaseI am tired. Deep down in my bones and in my heart, I am tired. I am tired of thinking about my eyes multiple times a day. I am tired...Reactions0reactionsComments4 comments
Going Through the Motions of EmotionFrom October 2018 to March 2020, I was in a constant state of worry over my eyes. Being worried was nothing new to me but suddenly I had something specific...Reactions0reactionsComments1 comments
Insensitive Reactions to People with Thyroid Eye DiseaseSymptoms of thyroid eye disease (TED) can be impossible to hide. The effects are often right there on the most visible part of your body – your eyes and face...Reactions0reactionsComments0 comments
My TED Symptoms Throughout the Active PhaseIn a past article, I addressed my initial symptoms of eye sensitivity and eye pain, which led me to search for a diagnosis. Before we get an actual diagnosis of...Reactions0reactionsComments4 comments
Thyroid Eye Disease In America Survey: Diagnosis and ManagementIn our first ever Thyroid Eye Disease In America Survey, we collected information from 100 people, ages 18 and over, about their experiences of living with thyroid eye disease (TED)...Reactions0reactionsComments2 comments
Red Flags and Thyroid Eye Disease - How I Found My DoctorIt is hard to find the right doctor for thyroid eye disease. I often see questions online - where do I turn? Who can diagnose me? Does my endocrinologist handle...Reactions0reactionsComments0 comments
How Has TED Impacted Your Mental Health?Mental health can be affected by anything at any time. Every person is different, and what impacts you and how you take care of your mental health is unique to...Reactions0reactionsComments0 comments
Sunglass Hut Gift Card Giveaway!The Sunglass Hut Gift Card Giveaway is now closed. Thank you for your interest! Summer is here! Don’t let thyroid eye disease (TED) keep you inside! Enter our giveaway for...Reactions0reactionsComments0 comments
Another DiagnosisSix months into my thyroid eye disease (TED) journey, I was diagnosed with another eye condition called keratoconus. I needed to get some more imaging done of my eyes that...Reactions0reactionsComments0 comments
Out of Control with Graves' DiseaseI think...no... I know I have always harbored a certain amount of anxiety. I tend to think deeply, putting everything in its proper place in my mind. With my mental...Reactions0reactionsComments0 comments
A “Grave” Concern About The Heart - Graves’ Disease and Heart Rate“What’s so scary about Graves’ disease?” I see this comment online a fair amount to which I think - "What isn’t scary about Graves’ disease?" My experience with Graves’ was...Reactions0reactionsComments0 comments
Finding Credible Health Information on Thyroid Eye DiseaseThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites and beyond, advice about your health is available...Reactions0reactionsComments0 comments
How I Advocate For Myself at the DoctorsGoing to any doctor can be nerve-wracking. Going to a specialty doctor, whether it be an eye doctor or an endocrinologist for thyroid eye disease (TED), can be overwhelming, especially...Reactions0reactionsComments0 comments
