What Does Bringing Awareness to Thyroid Eye Disease Mean to You?Living with thyroid eye disease (TED) can be challenging. It can change your appearance, affect your confidence and self-esteem, and be hard to explain to other people who do not...Reactions0reactionsComments0 comments
How I Became an Advocate for Thyroid Eye DiseaseBecoming a vocal advocate within the thyroid eye disease (TED) community was never something that I expected, nor frankly was it something that I initially wanted. I have been an...Reactions0reactionsComments0 comments
Thyroid Eye Disease Awareness Week 2022 Giveaway!The Thyroid Eye Disease Awareness Week 2022 Giveaway is now closed. Thank you for your interest! The third week of November is Thyroid Eye Disease Awareness Week! For our inaugural...Reactions0reactionsComments0 comments
Bringing Awareness to Thyroid Eye Disease: Our Inaugural TED Awareness Week 2022The third week of November is Thyroid Eye Disease Awareness Week! From double vision to dry and painful eyes to uncomfortable eye bulging, we know how difficult it can be...Reactions0reactionsComments0 comments
My Letter to Thyroid Eye Disease (TED)You crept into my life in 2017, no introduction, no common friend, no invite...but there you were. On and off throughout my days you would interrupt me by injecting pressure...Reactions0reactionsComments0 comments
My Mental Health is Number OneI know I have talked previously about mental health, thyroid disease, and thyroid eye disease (TED), but thought I would take a deeper dive into it. I know for me...Reactions0reactionsComments0 comments
Eye Drops or No Eye Drops? A Dry Eye Dilemma“Your eyes are extremely dry. Can you feel how dry they are?” My regular eye doctor asked me during a follow-up visit with her two months after I was diagnosed...Reactions0reactionsComments0 comments
New AdventuresStarting a new adventure is always the best. It is exciting and fun. On the other hand, it can also be extremely terrifying and nerve-racking. New beginnings are a mix...Reactions0reactionsComments0 comments
Getting New Glasses with Thyroid Eye DiseaseI do not wear glasses all the time. I primarily need them for seeing details far away. My physical symptoms of thyroid eye disease (TED) progressed, and because I did...Reactions0reactionsComments0 comments
The Elevator SpeechWhen I was first diagnosed with thyroid eye disease (TED), I did not want to believe it. So, simply put, I just did not. In fact, I denied it. I...Reactions0reactionsComments4 comments
Reminders of TEDThe other day, I experienced a really bad migraine. It was so bad that I had to lie down in my bed for two hours because it hurt to move...Reactions0reactionsComments0 comments
The Never Ending ExperienceHaving thyroid eye disease (TED) and a thyroid disease is really crazy. I feel like sometimes I feel really good and other times I do not. When I feel like...Reactions0reactionsComments0 comments
Where I Find Support for Thyroid Eye DiseaseThyroid eye disease (TED) often feels very lonely. There is so much sadness and pain surrounding this disease, and it is hard for others to truly understand what individuals with...Reactions0reactionsComments0 comments
Tips For Staying Connected While Dealing With TEDOur need for staying connected to other human beings, and a strong social support network, is a must for good health, just like nourishing food. The ups and downs of...Reactions0reactionsComments0 comments
Questions I Had About TED After I Was Diagnosed (Part 2)After the initial shock of my thyroid eye disease (TED) diagnosis wore off, I still had a lot of questions. These questions had to deal more with the journey TED...Reactions0reactionsComments0 comments
Thyroid Eye Disease - Talking About It Versus SilenceI generally respond to stress in two different ways: I will chat about work stress, politics, and what wild thing recently happened in the autoimmune disease community that I need...Reactions0reactionsComments0 comments
Whatever You Do, SHOW UP!I was recently invited to a bridal shower. I was also recently diagnosed with thyroid eye disease (TED). For me, these two events directly contradicted one another. For all of...Reactions0reactionsComments4 comments
Patient Leader Preferences: Sunglasses or Hats?We recently asked our thyroid eye disease (TED) community members to share their preferences with us on a variety of topics. We soon realized that sometimes the answers were complex...Reactions0reactionsComments0 comments
Is There an Ideal Bedtime?Is there such a thing as an ideal bedtime? Or is there an optimal quantity and quality of sleep that each person needs each night? There is no single answer...Reactions0reactionsComments0 comments
Questions I Had About TED When I Was Initially Diagnosed (Part 1)When I was initially diagnosed with thyroid eye disease (TED), I was overwhelmed. There was a lot of significant change happening all at once with the onset of the symptoms...Reactions0reactionsComments0 comments
