Losing My Expressiveness to Thyroid Eye DiseaseI have always been an expressive person. I have been acting, singing, and dancing since I was a child. Public speaking is part of everything that I do, and I...Reactions0reactionsComments0 comments
Discovering Eye MasksWhen I wake up, I typically have puffy under-eye-bags from sleeping. One morning I woke up frustrated to see them extra puffy. I instantly began googling eye masks. Then I...Reactions0reactionsComments3 comments
My Questions for Our Community MembersI am a team member for this community, I respond to your questions and concerns as you navigate through the challenges of having thyroid eye disease (TED). But the truth...Reactions0reactionsComments0 comments
Questioning My Reality, What a Head Game!Being diagnosed with thyroid eye disease (TED), just naturally comes with a difficult shift in mentality. Knowing that this is a long term illness, and that it affects people differently...Reactions0reactionsComments0 comments
My Response to Misconceptions About Thyroid Eye DiseaseOver the years I have heard many myths and misconceptions about thyroid eye disease (TED). Rare diseases are often misunderstood, and this is one of my many attempts to address...Reactions0reactionsComments0 comments
Finding the Right Doctor for TEDFinding a doctor to help you navigate your thyroid eye disease (TED) can be tricky. TED is a rare disease, and few eye doctors specialize in this sort of thing...Reactions0reactionsComments0 comments
Cataracts: Not Part of My Game PlanGoing in for my second follow-up appointment months after strabismus surgery (eye muscle surgery), I hoped I could get a prescription for new glasses. I had trouble seeing distance and...Reactions0reactionsComments0 comments
I'm Still Here for You: Sharing My HopeIt's been a challenging journey since 2017, when Graves' disease and thyroid eye disease (TED) joined forces and attacked me at the same time. Reflecting on many of those days...Reactions0reactionsComments0 comments
What Is Medical Gaslighting?If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical gaslighting can happen to anyone, but it most...Reactions0reactionsComments0 comments
Reflecting on Active Phase Photos with Thyroid Eye DiseaseI do not enjoy looking at photos and videos of myself from when I was in the active phase of thyroid eye disease (TED). Granted, I didn't take many because...Reactions0reactionsComments0 comments
Lesson Learned the Hard WayRecently, I had a moment that put many of my thyroid eye disease (TED) problems into perspective. I hit my head. And I gashed it. I was getting something out...Reactions0reactionsComments0 comments
Waves of Change: Coping With SymptomsThe symptoms of thyroid eye disease (TED) can cause you to guess and second-guess what might come next. If you ask me, this is perhaps the most challenging aspect of...Reactions0reactionsComments0 comments
My Eyes Have Stabilized; What Did I Do Right?I was someone with thyroid eye disease (TED), asking, "What did I do wrong to make myself get this disease?" My eyes have finally stabilized, but I still ask myself...Reactions0reactionsComments4 comments
My Daily Routine with Thyroid Eye DiseaseAt this point in my journey with thyroid eye disease (TED), I've had 4 surgeries to help reverse some of the damage caused by TED. These surgeries certainly helped a...Reactions0reactionsComments0 comments
Lingering Reminders of TEDLately, I have been bumping my head randomly, but not enough to be concerned but enough to be more aware of this increase in repetition. My eyes see something but...Reactions0reactionsComments0 comments
I Can't Live With My Eyes ClosedAll I ever wanted to do was close my eyes. The active phase of thyroid eye disease (TED) was 3 years and if I did not want to miss out...Reactions0reactionsComments0 comments
Active and Inactive TEDThere is no clear definite answer or moment to when I went from the active phase of thyroid eye disease (TED) to inactive phase. It happened over a series of...Reactions0reactionsComments0 comments
The Diagnosis ProcessFor a few years, doctors' waiting rooms were common place in my life. At first, there was a lot of fear around it because I did not know what was...Reactions0reactionsComments0 comments
My Experience of Graves' Disease Overtaking Hashimoto’sWhile thyroid eye disease (TED) was controlling a lot of my life, at the same time, I was dealing with the onset of Graves' disease. I was diagnosed with TED...Reactions0reactionsComments0 comments
AcceptanceAcceptance...oh, how I dreaded that word sometimes, but yet, to have acceptance of some aspects of our life can bring such peace. I am sure like many others, I seem...Reactions0reactionsComments0 comments