How Do I Connect With Other People Living With Thyroid Eye Disease?

Navigating a life with thyroid eye disease (TED) can feel very lonely. The visibility of this condition can be stigmatizing and create isolating experiences. TED affects people living with it physically, mentally, emotionally, socially, and financially.

What is ThyroidEyeDisease.net?

ThyroidEyeDisease.net is an online community and safe space for those directly impacted by TED – namely patients and caregivers. It is a place to get answers, ask questions, and connect with and find support from others who "get it." Our team of Health Leaders write and engage with our community members using their experiences living with or caring for someone with TED, but there's so much more to the community!

You do not have to feel alone in your experiences. You can create an account (it's free!) to start connecting with others like you!

What type of content can I read?

Most people find our community by reading our Health Leader and Editorial articles. Our team of Health Leaders writes the bulk of our content about their personal journeys and day-to-day life with TED – physical symptoms, the emotional toll of the condition, and more. The rest of our content is informational and clinical in nature and created by our Editorial Team to help you better understand your condition.

If you can't find a piece of content that answers your questions, please do not hesitate to email us at contact@thyroideyedisease.net.

Where can I ask and answer questions?

If you have burning questions you would like to ask, or want to help others by answering theirs, join our forums. You can start or join existing conversations and find support from other community members who understand. You can also browse and search through our forums to see if the question you have is already posted.

You can start by telling us more about yourself in the forum below:

Where can I share my story?

If you have found solace reading stories from those directly impacted by TED, visit our Stories section! This is where personal experiences written by community members like you live. You can share your unique journey with TED with others, too.

If you aren't sure what to share, we're here to help.

Where can I post updates on my journey?

Whether you are feeling stressed, looking to learn about a treatment, getting ready for a doctor's visit, or dealing with a flare-up, we are here to listen and support you! If you want to share how you are doing in your TED journey, you can post a status update to tell us about it.

Thank you!

We hope you find what you're looking for on ThyroidEyeDisease.net – whether it's learning more about your condition, sharing your own experiences, asking questions, or connecting with others who can relate.