Living

While both my eyelids have lowered on their own after the long journey I have been on with thyroid eye disease (TED), the habit of looking at my eyes first...

Somehow it feels like the moment I mention that I have autoimmune conditions, suddenly everyone is an expert, even if they have never heard of the diseases. And I know...

I find that it is unfortunately all too easy to write about the negative or hurtful comments I have received in relationship to thyroid eye disease (TED). In fact I...

After I was diagnosed with thyroid eye disease (TED), I made a conscious decision not to drink. I was not a big drinker anyway so it was not much of...

The ongoing question that went through my mind daily was, "Will my eyes ever go back to normal again?" Whether it was a whisper to myself or a desperate plea...

I recently received some good news. I had a yearly eye exam and a 6 month follow-up with my endocrinologist. Both of those visits were positive. My labs are stable...

I am the planner. Do you have a band aid? A tissue? An aspirin? A tape measure? Yes, I do, I am prepared. But, not for thyroid eye disease (TED)...

I needed a change with my hair. I had the same hairstyle for over 5 years. What started as a bob just below my ears remained the same as it...

I have talked a ton previously about my thyroid eye disease (TED). For a little recap, I was diagnosed with Graves’ disease in my mid-twenties and then later diagnosed with...

For so many years, thyroid eye disease (TED) took over all my thoughts. It was my main source of worry and concern in my daily life. I was obsessed with...

I feel like I have had a ton of time to reflect on everything, from my Graves' disease diagnosis to my thyroid eye disease (TED) diagnosis. It was and continues...

I walk through the store without pain from the light. I do not wear sunglasses or a hat. My eyes do not well up from imitation. I spent years shielding...

Editor's Note: This article originally appeared on our partner site RareDisease.net. It can be so hard for people outside of the rare disease community to truly understand what we go...

I am always worried (scared - okay, beyond terrified) that something bad will happen and thyroid eye disease (TED) will rear its’ ugly head again, launching itself into a new...

When you are dealing with a disease as complicated and individualized as thyroid eye disease (TED), the facts can be a bit blurry around the edges. I have been diagnosed...

I am a creative person. I love writing poetry, stories, and journaling. I got a BA in creative writing from Metropolitan State University of Denver and graduated with Cum Laude...

I am reading through my old journals and I am shocked by the absence of my thyroid eye disease (TED). I did not remember this but when I was diagnosed...

Thyroid eye disease (TED) has a huge impact on my life physically, emotionally, socially, and financially. But it has also necessitated small changes and those small changes help me cope...

It has been a few years since I have experienced extreme thyroid eye disease (TED) symptoms. I have lived in a phase I would call my new normal. Things definitely...

Waking up with double vision on the first Wednesday of October 5 years ago was the first time I was suddenly made aware something had changed with my eyes. When...