How Do I Connect With Other People Living With Thyroid Eye Disease?Navigating a life with thyroid eye disease (TED) can feel very lonely. The visibility of this condition can be stigmatizing and create isolating experiences. TED affects people living with it...Reactions0reactionsComments0 comments
How TED Defined My Twenties (Part 1)I have been reflecting a lot lately. I turned 30 in August. When I look back on this monumental decade of my life, my thyroid eye disease (TED) takes up...Reactions0reactionsComments0 comments
Now I UnderstandI know I wanted people to understand what I was going through with my thyroid eye disease. I couldn't sit alone with my misery. Now that the worst has passed...Reactions0reactionsComments0 comments
The Power of PatternsWhen I had thyroid eye disease (TED), I would always wear a hat and sunglasses in public. This is what made me feel safe navigating life while my reality was...Reactions0reactionsComments0 comments
Fearing The Side Effects of SurgeryI honestly felt physically pummeled when I was told I needed cataract surgery. Thyroid eye disease (TED) has put me through everything. How could I possibly have to go through...Reactions0reactionsComments2 comments
Losing My Expressiveness to Thyroid Eye DiseaseI have always been an expressive person. I have been acting, singing, and dancing since I was a child. Public speaking is part of everything that I do, and I...Reactions0reactionsComments0 comments
Discovering Eye MasksWhen I wake up, I typically have puffy under-eye-bags from sleeping. One morning I woke up frustrated to see them extra puffy. I instantly began googling eye masks. Then I...Reactions0reactionsComments3 comments
My Questions for Our Community MembersI am a team member for this community, I respond to your questions and concerns as you navigate through the challenges of having thyroid eye disease (TED). But the truth...Reactions0reactionsComments0 comments
Questioning My Reality, What a Head Game!Being diagnosed with thyroid eye disease (TED), just naturally comes with a difficult shift in mentality. Knowing that this is a long term illness, and that it affects people differently...Reactions0reactionsComments0 comments
Finding the Right Doctor for TEDFinding a doctor to help you navigate your thyroid eye disease (TED) can be tricky. TED is a rare disease, and few eye doctors specialize in this sort of thing...Reactions0reactionsComments0 comments
Cataracts: Not Part of My Game PlanGoing in for my second follow-up appointment months after strabismus surgery (eye muscle surgery), I hoped I could get a prescription for new glasses. I had trouble seeing distance and...Reactions0reactionsComments0 comments
I'm Still Here for You: Sharing My HopeIt's been a challenging journey since 2017, when Graves' disease and thyroid eye disease (TED) joined forces and attacked me at the same time. Reflecting on many of those days...Reactions0reactionsComments0 comments
What Is Medical Gaslighting?If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical gaslighting can happen to anyone, but it most...Reactions0reactionsComments0 comments
Reflecting on Active Phase Photos with Thyroid Eye DiseaseI do not enjoy looking at photos and videos of myself from when I was in the active phase of thyroid eye disease (TED). Granted, I didn't take many because...Reactions0reactionsComments2 comments
Lesson Learned the Hard WayRecently, I had a moment that put many of my thyroid eye disease (TED) problems into perspective. I hit my head. And I gashed it. I was getting something out...Reactions0reactionsComments0 comments
Waves of Change: Coping With SymptomsThe symptoms of thyroid eye disease (TED) can cause you to guess and second-guess what might come next. If you ask me, this is perhaps the most challenging aspect of...Reactions0reactionsComments0 comments
My Eyes Have Stabilized; What Did I Do Right?I was someone with thyroid eye disease (TED), asking, "What did I do wrong to make myself get this disease?" My eyes have finally stabilized, but I still ask myself...Reactions0reactionsComments6 comments
My Daily Routine with Thyroid Eye DiseaseAt this point in my journey with thyroid eye disease (TED), I've had 4 surgeries to help reverse some of the damage caused by TED. These surgeries certainly helped a...Reactions0reactionsComments0 comments
Going Out on a Sunny DayGoing out on a sunny day while managing the symptoms of thyroid eye disease (TED) can be challenging. In this video I describe some of the accommodations I make to...Reactions0reactionsComments0 comments
Lingering Reminders of TEDLately, I have been bumping my head randomly, but not enough to be concerned but enough to be more aware of this increase in repetition. My eyes see something but...Reactions0reactionsComments0 comments