Reflecting on Active Phase Photos with Thyroid Eye DiseaseI do not enjoy looking at photos and videos of myself from when I was in the active phase of thyroid eye disease (TED). Granted, I didn't take many because...Reactions0reactionsComments0 comments
Lesson Learned the Hard WayRecently, I had a moment that put many of my thyroid eye disease (TED) problems into perspective. I hit my head. And I gashed it. I was getting something out...Reactions0reactionsComments0 comments
Waves of Change: Coping With SymptomsThe symptoms of thyroid eye disease (TED) can cause you to guess and second-guess what might come next. If you ask me, this is perhaps the most challenging aspect of...Reactions0reactionsComments0 comments
My Eyes Have Stabilized; What Did I Do Right?I was someone with thyroid eye disease (TED), asking, "What did I do wrong to make myself get this disease?" My eyes have finally stabilized, but I still ask myself...Reactions0reactionsComments4 comments
My Daily Routine with Thyroid Eye DiseaseAt this point in my journey with thyroid eye disease (TED), I've had 4 surgeries to help reverse some of the damage caused by TED. These surgeries certainly helped a...Reactions0reactionsComments0 comments
Going Out on a Sunny DayGoing out on a sunny day while managing the symptoms of thyroid eye disease (TED) can be challenging. In this video I describe some of the accommodations I make to...Reactions0reactionsComments0 comments
Lingering Reminders of TEDLately, I have been bumping my head randomly, but not enough to be concerned but enough to be more aware of this increase in repetition. My eyes see something but...Reactions0reactionsComments0 comments
I Can't Live With My Eyes ClosedAll I ever wanted to do was close my eyes. The active phase of thyroid eye disease (TED) was 3 years and if I did not want to miss out...Reactions0reactionsComments0 comments
Active and Inactive TEDThere is no clear definite answer or moment to when I went from the active phase of thyroid eye disease (TED) to inactive phase. It happened over a series of...Reactions0reactionsComments0 comments
The Diagnosis ProcessFor a few years, doctors' waiting rooms were common place in my life. At first, there was a lot of fear around it because I did not know what was...Reactions0reactionsComments0 comments
My Experience of Graves' Disease Overtaking Hashimoto’sWhile thyroid eye disease (TED) was controlling a lot of my life, at the same time, I was dealing with the onset of Graves' disease. I was diagnosed with TED...Reactions0reactionsComments0 comments
AcceptanceAcceptance...oh, how I dreaded that word sometimes, but yet, to have acceptance of some aspects of our life can bring such peace. I am sure like many others, I seem...Reactions0reactionsComments0 comments
Seeing My Myself AgainWhile both my eyelids have lowered on their own after the long journey I have been on with thyroid eye disease (TED), the habit of looking at my eyes first...Reactions0reactionsComments0 comments
Thyroid Eye Disease and Unsolicited AdviceSomehow it feels like the moment I mention that I have autoimmune conditions, suddenly everyone is an expert, even if they have never heard of the diseases. And I know...Reactions0reactionsComments0 comments
Positive Interactions with Thyroid Eye DiseaseI find that it is unfortunately all too easy to write about the negative or hurtful comments I have received in relationship to thyroid eye disease (TED). In fact I...Reactions0reactionsComments0 comments
Choosing Not to DrinkAfter I was diagnosed with thyroid eye disease (TED), I made a conscious decision not to drink. I was not a big drinker anyway so it was not much of...Reactions0reactionsComments0 comments
My Eyes Have StabilizedThe ongoing question that went through my mind daily was, "Will my eyes ever go back to normal again?" Whether it was a whisper to myself or a desperate plea...Reactions0reactionsComments0 comments
StabilityI recently received some good news. I had a yearly eye exam and a 6 month follow-up with my endocrinologist. Both of those visits were positive. My labs are stable...Reactions0reactionsComments0 comments
To Go or Not To GoI am the planner. Do you have a band aid? A tissue? An aspirin? A tape measure? Yes, I do, I am prepared. But, not for thyroid eye disease (TED)...Reactions0reactionsComments0 comments
How TED Decided My HairI needed a change with my hair. I had the same hairstyle for over 5 years. What started as a bob just below my ears remained the same as it...Reactions0reactionsComments0 comments