How and where did you find your best treatment? Share your experience with doctors.
CommunityMember6 Member
I have a TED's eye specialist, Strabismus surgeon, Glaucoma specialist, Cataract specialist, and regular eye doctor, also Endocrinologist and PCP.
Beth.Huffman Community Admin
How are you doing today? Thanks for sharing with us. How has your experience been with your team of doctors? Do you find they work well together in supporting you? -Beth (Team Member)
CommunityMember6 Member
I am fine. My doctors work well together, but there just seems to be no end to all the changes my eyes are making due to the TEDs.
Beth.Huffman Community Admin
I'm glad to hear you have a good team behind you. That is a big step in the right direction. I know from reading more about your experiences in another post you have had a long journey with TED. I can imagine that itself is overwhelming, and adding the constant changes to your eyes in the mix is exhausting. My heart goes out to you; please remember to be kind to yourself. This isn't easy, and you're allowed to have tough days. Is there anything I could try to help you with? Are there any topics of discussion you'd like more information on? I genuinely mean it when I say our community is here for you and happy to help as we can. Sending hugs your way! -Beth (Team Member)