How and where did you find your best treatment? Share your experience with doctors.
CommunityMember6 Member
Last Updated:
I have a TED's eye specialist, Strabismus surgeon, Glaucoma specialist, Cataract specialist, and regular eye doctor, also Endocrinologist and PCP.
Beth.Huffman Member
Last Updated:
How are you doing today? Thanks for sharing with us. How has your experience been with your team of doctors? Do you find they work well together in supporting you? -Beth (Team Member)
CommunityMember6 Member
Last Updated:
I am fine. My doctors work well together, but there just seems to be no end to all the changes my eyes are making due to the TEDs.
Beth.Huffman Member
Last Updated:
I'm glad to hear you have a good team behind you. That is a big step in the right direction. I know from reading more about your experiences in another post you have had a long journey with TED. I can imagine that itself is overwhelming, and adding the constant changes to your eyes in the mix is exhausting. My heart goes out to you; please remember to be kind to yourself. This isn't easy, and you're allowed to have tough days. Is there anything I could try to help you with? Are there any topics of discussion you'd like more information on? I genuinely mean it when I say our community is here for you and happy to help as we can. Sending hugs your way! -Beth (Team Member)