Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about thyroid eye disease.

Side effects

I just started the process to receive Tepezza treatments. I was reading about the side effects and the one that really concerns me is the possibility of losing my hearing...

Driving

Why is it so much harder to drive at night than day even with my glasses? And will i ever get over my light sensitivity?...

VENT: How are you doing? - Really.

Life with a chronic condition, like thyroid eye disease (TED), has its challenges and frustrations - that is no secret. Sometimes it is helpful to talk about those frustrations or...

Has anyone here dealt with Thyroid Eye Disease (TED)? What symptoms did you experience, and what helped you manage the discomfort or appearance changes?

Thyroid Eye Disease is an autoimmune condition often linked with hyperthyroidism or Graves' disease, causing inflammation, bulging eyes, eye pain, double vision, and dryness. It's not just cosmetic—it can seriously...

Featured

Active Phase

I am starting IV SoluMedrol infusions this weekend for an active phase of TED. Future Tepezza is planned. I was wondering if anyone had any effects/results with steroid infusions....

What brings you to our community?

Tell us: What information about TED are you looking for?...

Welcome! Please Introduce Yourself

Welcome to our community! We’d love to learn a little about what has brought you here....

Current Treatment for TED

Are you satisfied with your current thyroid eye disease treatment?...

Good eyelid weight

Hi everyone my name is Sarah ,and I am a long time sufferer of ted.i was diagnosed in 2016 and have had two operations so far to try and rectify...

TED Returning

For those in the Inactive Stage: Do you ever worry about your TED returning to the active stage? How do you deal with those worries?...

Categories

Select a category to find topics that interest you.