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Read conversations, start a discussion, and connect with others about thyroid eye disease.

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Active Phase

I am starting IV SoluMedrol infusions this weekend for an active phase of TED. Future Tepezza is planned. I was wondering if anyone had any effects/results with steroid infusions....

Impact on Daily Routine

What changes or adaptations have you made to your daily routine because of TED?...

What brings you to our community?

Tell us: What information about TED are you looking for?...

Welcome! Please Introduce Yourself

Welcome to our community! We’d love to learn a little about what has brought you here....

Current Treatment for TED

Are you satisfied with your current thyroid eye disease treatment?...

Good eyelid weight

Hi everyone my name is Sarah ,and I am a long time sufferer of ted.i was diagnosed in 2016 and have had two operations so far to try and rectify...

TED Returning

For those in the Inactive Stage: Do you ever worry about your TED returning to the active stage? How do you deal with those worries?...

Misconceptions about TED

What misconceptions have you heard/experienced about thyroid eye disease?...

My Teen has TED and I'm looking for help

Hello everyone, My 16 year old daughter has been diagnosed with Graves disease and TED. Her left eye has a noticeable bulge compared to her right eye. The doctors believe...

TED

Had thyroid cancer surgery in 3\2020 (total thyroid and some throat and neck glands. Dr. Has reduced my Synthroid meds to 88 mg. I'm having TED symptoms (Redness, tearing most...

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