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Read conversations, start a discussion, and connect with others about thyroid eye disease.

How long does it take for TED to become stable and inactive?

I want to get orbital decompression surgery but my eyes are worsening and the disease is active right now. How long did...

Can’t do Tepezza due to Ulcerative colitis history. Anybody in the same boat?

Has anybody been told that they can’t do Tepezza because of ulcerative colitis or IBD? My doctor told me it wasn’t an...

Unsolicited Advice

What is the worst unsolicited advice you have received about your TED?...

Positive Moments

Have you had a positive interaction with someone related to your TED? Have you had a doctor's appointment that made you feel...

Tepezza

I’ve heard there’s a real possibility of a maintenance dose Tepezza in the near future. Pill or possibly an injection, I for...

How has TED impacted you?

How has TED impacted your life? (Daily life, relationships, emotional well-being, etc.)...

What do you want to know about TED?

What topics related to living with TED would you like to read or hear more about?...

Coping with TED

How do you cope with thyroid eye disease (TED)? What worked for you?...

Looking for a Dr recommendation

I am brand new here. 2 years ago I was diagnosed with Visual Snow Syndrome. During my appointment with my neuro ophthalmologist...

Will you take our In America survey and help others understand the impact of thyroid eye disease?

The In America survey is now closed. We are conducting our In America survey to learn more about the challenges of living...

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