FeaturedActive PhaseI am starting IV SoluMedrol infusions this weekend for an active phase of TED. Future Tepezza is planned. I was wondering if anyone had any effects/results with steroid infusions....Reactions0reactionsComments15 repliesActive Phase
Fresnel prisms I am looking to purchase stick+on Fresnel prisms - where can I purchase them...Reactions0reactionsComments2 repliesVision
ThyroidWell, I was told I have hypothyroidism, and I am taking medicine, but my eyes are fading sight-wise. I’m 67 female...I know the thyroid gland controls the brain, heart, stomach...Reactions0reactionsComments1 replies
What video content is helpful to you?What videos about TED would be helpful to watch? From getting ready routines with TED to coping with symptoms and everything in between, let us know!...Reactions0reactionsComments0 repliesCoping
Trial offered for LASN (phase 2) and Linsitinib (phase 2b)Hi, TED patient UK here, moderate-severe case, eyes already impacted by high astigmatism and short sightedness (L -22, R -15). Diagnosed with hyperthyroidism in Feb, on Carbimazole for over 5wks,.and...Reactions0reactionsComments3 repliesNewly DiagnosedTreatment
How long does it take for TED to become stable and inactive?I want to get orbital decompression surgery but my eyes are worsening and the disease is active right now. How long did it take for the disease to become inactive?...Reactions0reactionsComments12 replies
Can’t do Tepezza due to Ulcerative colitis history. Anybody in the same boat?Has anybody been told that they can’t do Tepezza because of ulcerative colitis or IBD? My doctor told me it wasn’t an option, please let me know what you guys...Reactions0reactionsComments1 replies
Unsolicited Advice What is the worst unsolicited advice you have received about your TED?...Reactions0reactionsComments0 repliesCoping
surgeryHas anyone tried surgery interventions to realign eyes?...Reactions0reactionsComments11 repliesSurgery
Positive MomentsHave you had a positive interaction with someone related to your TED? Have you had a doctor's appointment that made you feel great? Maybe a great day where symptoms didn't...Reactions0reactionsComments0 repliesCoping