ThyroidWell, I was told I have hypothyroidism, and I am taking medicine, but my eyes are fading sight-wise. I’m 67 female...I know the thyroid gland controls the brain, heart, stomach...reactions1reply
What video content is helpful to you?What videos about TED would be helpful to watch? From getting ready routines with TED to coping with symptoms and everything in between, let us know!...reactionsrepliesCoping
Trial offered for LASN (phase 2) and Linsitinib (phase 2b)Hi, TED patient UK here, moderate-severe case, eyes already impacted by high astigmatism and short sightedness (L -22, R -15). Diagnosed with hyperthyroidism in Feb, on Carbimazole for over 5wks,.and...reactions3repliesTreatmentNewly Diagnosed
How long does it take for TED to become stable and inactive?I want to get orbital decompression surgery but my eyes are worsening and the disease is active right now. How long did it take for the disease to become inactive?...reactions12replies
Can’t do Tepezza due to Ulcerative colitis history. Anybody in the same boat?Has anybody been told that they can’t do Tepezza because of ulcerative colitis or IBD? My doctor told me it wasn’t an option, please let me know what you guys...reactions1reply
Unsolicited Advice What is the worst unsolicited advice you have received about your TED?...reactionsrepliesCoping
Positive MomentsHave you had a positive interaction with someone related to your TED? Have you had a doctor's appointment that made you feel great? Maybe a great day where symptoms didn't...reactionsrepliesCoping
TepezzaI’ve heard there’s a real possibility of a maintenance dose Tepezza in the near future. Pill or possibly an injection, I for one am all in if this happens and...reactions1reply
How has TED impacted you?How has TED impacted your life? (Daily life, relationships, emotional well-being, etc.)...reactions13repliesCoping
What do you want to know about TED?What topics related to living with TED would you like to read or hear more about?...reactions4repliesTips & Advice